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I AM ALS Town Hall on Synapticure


Gather around, good people! 

I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET! 

Brian, Sandra, and I AM ALS’s board will give a presentation on Synapticure, how I AM ALS has taken steps to create an Independent Committee for any matters related to Synapticure, and, of course, answer your questions!

After Brian was diagnosed with ALS in 2017, Brian and Sandra went through the typical ALS journey of devastation, frustrating medical appointments, repeating the same tests, advocating for access to genetic testing, and searching on their own for the appropriate clinical trials and promising therapies.

This is a journey far too many of us know.

In typical Brian and Sandra fashion, they wanted to change the landscape. In 2019, they launched I AM ALS, a patient-centric, patient-led nonprofit dedicated to rewriting the ALS story. It has since grown into a community of over 118,000. Through I AM ALS, they met countless patients who told the same story about their diagnosis and care journey.

Brian and Sandra used the same patient-centric spirit of change and empowerment and formed Synapticure. For far too long, people with neurodegenerative diseases have not received the care they deserve. Synapticure is here to change that.  

Please join I AM ALS’ Town Hall on Synapticure on Thursday, February 2nd at 5 pm, ET.

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