My grandfather died of ALS and I lost my mother to it on 1/10/20. During the final year of her battle, I tested positive for carrying the C9 mutation.
This strengthened a resolve in me that ALS will NOT have the last word. I will fight for the new "family" that I am a part of and we WILL defeat this beast.
In the past 10 years I have had uterine cancer, a brain tumor/seizure disorder and now a motor neuron disease. This last diagnosis eclipsed all the others, but, like my terriers, I remain tenacious.
Yet even though I haven’t found a miraculous physical recovery, this illness--along with the support of my husband, family, and community--has taught me how to be strong and persevere, and challenged me to cultivate gratitude in simple joys I once took for granted.