Every time I put my flight gear on I think of him and know he’s there with me while I fly.
I have seen ALS take members of my family away from C9orf72 related ALS/FTD. I refuse to let the disease take who I am away.
Kate Frost Fink
I share her story to not only let others be aware of this disease, but also to one day help find a cure!
He was the kindest and most serene person that anyone will ever meet in their lifetime. He was definitely the type of person that this world desperately needs.