I may lose the battle, but I refuse to go down without a good fight, and we have to change ALS story now!
I am a mom of two high school-age kids, a wife, and school teacher. I was diagnosed on March 5, 2021.
At 48 my son was diagnosed with rapid progression ALS. 5 years and 5 months he still fights for his life.
While my Granny lost her voice, I used mine to support efforts to those fighting ALS and it has been a passion of mine for the past decade.