Legislative Priorities of the Legislative Affairs Community Team in the First 100 Days of 2021


The fierce advocates on I AM ALS’ Legislative Affairs Community Team have set an aggressive but critical agenda for the first 100 days of 2021. Here are the team’s top priorities: 

Legislative Affairs Community Team Priority 1

The I AM ALS Legislative Affairs Community Team will connect with every single member of the 117th Congress. Critical to this effort is building relationships and sharing the impact ALS has in their communities and districts, cultivating champions for change now and for generations to come. 

Legislative Affairs Community Team Priority 2

This team has set a goal of growing the ALS Caucus to more than 200 members at the federal level in the first 100 days of 2021 and working to develop regional teams to build state ALS caucuses, bringing in more champions who can deliver meaningful change. I AM ALS advocates started the ALS Caucus in 2019 to develop ALS champions at the federal level and facilitate the creation and passage of laws addressing needs in the ALS community. At the end of 2019, the Legislative Affairs Community Team had recruited 86 members of the House of Representatives to the ALS Caucus. Over the course of 2020, they doubled-down on these efforts, leading to the creation of an ALS Senate Caucus and growing total Caucus members to 158 across the House and Senate. 

Legislative Affairs Community Team Priority 3

Team work makes dream work. The more advocates we have, the better. This is why the I AM ALS Legislative Affairs Community Team will develop an advocacy training within the first 100 days of 2021. The training will strengthen the movement by adding and empowering advocates.

 The I AM ALS Legislative Affairs Team is on a mission to engage and create more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones. If you’re interested in being part of changing history with this group, check out more here.


We will find cures for ALS. The only question is when. That answer depends on you.

Stay informed on I AM ALS’ progress and what you can do to help us make hope real.

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