I AM ALS
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I amKeegan Hale
As hard as it was, I’d do it all over again if I could get him back.
In memory ofBill Cox
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My family has lost grandparents, parents, siblings, uncles, aunts, and their children to this disease.
I amConnie Becker
I amRose Joyce
I amMargo Kelly
I amJean Swidler - My Research Experience
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It was hard not to tell my perceptive sons, now seventeen and fourteen, who were part of my support network. But I didn’t want to worry them and I didn’t want them to fear that they would develop ALS – especially since they couldn’t even be tested yet.
I amMindy Uhrlaub - How I Talked to My Teens About My Genetic Status
In memory ofMike Tamburino
I earned my BA in liberal studies in 2014, and in 2015 I started to take a state test, but started to fall. I also could not hold the steering wheel of the car and had to stop driving.
I amRenee Rizzo
I amPhilesha Shoats
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I amKaren Madrigal
We are hoping that I have years before it moves farther, but I am so thankful for my wife and my family caregivers. Realize that their life changes too when you can’t hug your wife, hug your kids, or hug your grandchildren.
I amMichael Peebles
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