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Why Take Action?

You are a leader in this community’s fight to end ALS. As a leader, you have the power to speed the fight for treatments and cures. Here’s how to take action, to activate those around you, to demand change, and to accelerate the timeline to treatments and cures.

Educate Your Community

If this is your first time learning about ALS, you're not alone. The majority of Americans don't know what ALS is. Here’s how you can change that: 

  1. Watch the 60-second video below and then share it with 5 (yes, 5!) of your friends.
  2. Host an ALS awareness event. Click here for a step-by-step guide on how to host.

Share Your Story

Share your #IAMALS story. ALS wins when we wage our fight in the shadows. Patients, caregivers, loved ones of a patient, researchers, health professionals, and advocates share with this community and beyond the beauty, pain, hope and fear of your fight. The more who have the courage to share their stories, the more people we will inspire to join this movement.

Congressional ALS Caucus Members

The ALS Congressional Caucus is a bipartisan group champions on Capitol Hill who are leading the federal fight to end ALS. Many have been personally impacted by the disease. All have been moved by the strength and energy of the ALS community.


ALS Caucus Members

Build Congressional Champions

Contact Your Representative To Join The ALS Congressional Caucus

Above are the current members of the ALS Caucus. Until that list includes every Representative we have more work to do. Here’s how you can help:

  1. If you see that your Representative is a member of the Caucus, let us know and we will send you a social media card to thank them publicly: Click here to email us.
  2. If your Representative is not a member of the Caucus, email us at [email protected] with your zip code and we will send you step-by-step instructions on how to reach out and ask them to join.

Wondering what else you could ask your member of Congress to support? Click here to learn more.

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