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Welcome to the Revolution

Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.

297099 Bold actions have been taken so far

How much change will you make to find cures for ALS?

I'm new here! This isn't my first rodeo!

Engagement Level 1

Tofersen AdCom Viewing Event

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Be a part of the Black Bears’ Lou Gehrig Day!

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Be a part of the Mariners’ ALS Awareness Day!

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Be a part of the Diamondbacks’ Lou Gehrig Day!

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Be a part of the White Sox’s Lou Gehrig Day!

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Be a part of the Dodgers’ Lou Gehrig Day!

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Engagement Level 2

Calling All First Responders: Come Learn About ALS

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Having trouble accessing Relyvrio? Let us know

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Sign Up to Receive our Newly Diagnosed Email Series

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Show ALS Can Impact Anyone at Any Age

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Open-label extension petition

OLE now!

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Engagement Level 3

February Social Hour

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Show ALS Can Impact Anyone at Any Age

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I AM ALS Support Groups

Join a support group

Request a Panel of People Impacted by ALS

I want to learn!

Recommend a Caregiver

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Share Your ALS Helpful Hints

Share your helpful hint

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Engagement Level 4

Clinical Trials Recruitment and Retention Team

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Young Adult Team

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Lou Gehrig Day Team

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ALS Veteran Champion Award

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Build Congressional Champions Through the ALS Caucus

Take legislative action

Build a Relationship with Your Congressperson and Their Team

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Engagement Level 5

Sign up to be an ALS Outreach Advocate

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Join an I AM ALS Community Team

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Visit Your Representative’s Home Office or Set Up a Virtual Meeting

Take legislative action

Visit Your Senators’ Home Office or Set Up a Virtual Meeting

Take legislative action

Host a Fundraiser for I AM ALS

Submit your idea

The I AM ALS Peer Support Initiative

Become a Mentor

Access tools to drive forward ALS legislative priorities

Level up your ALS legislative advocacy

100,000 heroes in our advocate network.

Millions more talking about ALS.

Over 51,000 actions taken to push forward innovative ALS policy.

$55 million increase in federal funding for ALS research.

ALS impacts every community, including yours.

Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.

Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS

Looking for more ways to get involved?

Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.

Clinical Trials

The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.

Read more and reach out to get involved.

Community Outreach

The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.

Read more and reach out to get involved.

Familial ALS

The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.

Read more and reach out to get involved.

Legislative Affairs

The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.

Read more and reach out to get involved.

Thank You Squad

The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.

Read more and reach out to get involved.

Veterans

The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.

Read more and reach out to get involved.


Join us in rewriting the ALS story. Learn about actions you can take through your inbox.

We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!

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