1. Take Action

Welcome to the Revolution

Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.

175359 Bold actions have been taken so far

How much change will you make to find cures for ALS?

I'm new here! This isn't my first rodeo!

Engagement Level 1

Join us on MLB’s Lou Gehrig Day for ALS

Hit a home run!

Follow I AM ALS on Social Media

Stay connected

Join the Movement and Be in the Know

Stay connected

Show who ALS impacts through the Every Community map

Raise awareness

Test Your ALS Knowledge

Take the quiz

Get Your Community Read Up About ALS

Raise awareness

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Engagement Level 2

Open-label extension petition

OLE now!

Sign Up for Legislative Advocacy Training

Sign up here

Drop In to Navigation Office Hours

Sign Up

I AM ALS’ ACT for ALS 101 and Advocate Workshop

Pass the ACT!

Print an ALS Signal poster. Post it everywhere.

Raise awareness

Join the I AM ALS Familial ALS Social Hour!

Self Care

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Engagement Level 3

Let’s Talk About It: A Mental Health Series

Join the conversation

Update your congresspeople about the FDA Congressional hearing

Reach out!

Host a Panel of People Impacted by ALS

I want to learn!

Contact Your Representative and Senators About ACT for ALS

Take action

Fix the ALS Clinical Trial System

Share Your Ideas

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Engagement Level 4

Build Congressional Champions Through the ALS Caucus

Take legislative action

Build a Relationship with Your Congressperson and Their Team

Take legislative action

Host a Virtual ALS Awareness Happy Hour

Raise awareness

Give to ALS Research Through a Fundraising Campaign on Facebook

Fundraising made easy

Host an ALS Book Club

Raise awareness

Host a Viewing Party for a Movie About ALS

Raise awareness

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Engagement Level 5

Host a Fundraiser for I AM ALS

Submit your idea

Join Us for the FDA Congressional Hearing Watch Party

Join us

Download a guide on how to be an ALS advocate for the Promising Pathway Act

Pass this bill!

Download a guide on how to be an ALS advocate for ACT for ALS

Pass this bill!

Visit Your Representative’s Home Office or Set Up a Virtual Meeting

Take legislative action

Join an I AM ALS Community Team

Join a team

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Access tools to drive forward ALS legislative priorities

Level up your ALS legislative advocacy

100,000 heroes in our advocate network.

Millions more talking about ALS.

Over 51,000 actions taken to push forward innovative ALS policy.

$55 million increase in federal funding for ALS research.

ALS impacts every community, including yours.

Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.

Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS

Looking for more ways to get involved?

Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.

Clinical Trials

The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.

Read more and reach out to get involved.

Community Outreach

The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.

Read more and reach out to get involved.

Familial ALS

The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.

Read more and reach out to get involved.

Legislative Affairs

The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.

Read more and reach out to get involved.

Thank You Squad

The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.

Read more and reach out to get involved.


The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.

Read more and reach out to get involved.

Join us in rewriting the ALS story. Learn about actions you can take through your inbox.

We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!

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