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Welcome to the Revolution
Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.
301375 Bold actions have been taken so far
How much change will you make to find cures for ALS?
Engagement Level 1
Join us for Lou Gehrig Day 2023!
What’s in a Gene? Introduction to Familial ALS.
Be a part of the Flash’s Lou Gehrig Day!
Axe ALS/ I AM ALS team up on Lou Gehrig Day!
Be a part of the Woo Sox’s Lou Gehrig Day!
Be a part of the Tigers’ Lou Gehrig Day!
Engagement Level 2
Join us for Lou Gehrig Day 2023!
Big Feelings in Familial ALS: A Community Conversation about Generational Trauma
Tweet at your Senators to pass S. 326, incorporating the Elizabeth Dole Home Care Act
Protect South Carolinians from Genetic Discrimination! Pass H. 4218: Genetic Protection!
Elizabeth Dole Home Care H.R.542/S.141
Build Congressional Champions Through the ALS Caucus
Engagement Level 3
Join us for Lou Gehrig Day 2023!
Ask Me Anything ALS – Women Living with ALS
May Social Hour
Create your own Lou Gehrig Day event! 2023
I AM ALS Support Groups
Request a Panel of People Impacted by ALS
Engagement Level 4
Engagement Level 5
Join us for Lou Gehrig Day 2023!
Bismarck, ND Community Gathering
Sign up to be an ALS Outreach Advocate
Join an I AM ALS Community Team
Visit Your Representative’s Home Office or Set Up a Virtual Meeting
Visit Your Senators’ Home Office or Set Up a Virtual Meeting
Access tools to drive forward ALS legislative priorities
Level up your ALS legislative advocacy
100,000 heroes in our advocate network.
Millions more talking about ALS.
Over 51,000 actions taken to push forward innovative ALS policy.
$55 million increase in federal funding for ALS research.
ALS impacts every community, including yours.
Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.
Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS
Looking for more ways to get involved?
Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.
Clinical Trials
The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.
Community Outreach
The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.
Familial ALS
The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.
Legislative Affairs
The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.
Thank You Squad
The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.
Veterans
The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.
Join us in rewriting the ALS story. Learn about actions you can take through your inbox.
We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!