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Why Take Action?

You are a leader in this community’s fight to end ALS. As a leader, you have the power to speed the fight for treatments and cures. Here’s how to take action, to activate those around you, to demand change, and to accelerate the timeline to treatments and cures.

Educate Your Community

If this is your first time learning about ALS, you're not alone. The majority of Americans don't know what ALS is. Here’s how you can change that: 

  1. Watch the 60-second video below and then share it with 5 (yes, 5!) of your friends.
  2. Host an ALS awareness event. Click here for a step-by-step guide on how to host.

Give A Face to ALS

Help give a face to ALS. ALS wins when we wage our fight in the shadows and too few know about our fight to end ALS. It’s time to change that. We need you to help us give a face to ALS in every Congressional district in this country by entering your information or the information of a loved one you have lost to ALS on a map of the US to show the impact ALS has on all of our communities.

Congressional ALS Caucus Members

The ALS Congressional Caucus is a bipartisan group of champions on Capitol Hill who are leading the federal fight to end ALS. Many have been personally impacted by the disease. All have been moved by the strength and energy of the ALS community.


ALS Caucus Members

Build Congressional Champions

Get Your Steps in to Make Access to Treatments Real

Two new pieces of legislation were announced in the House and the Senate to create real pathways to faster and broader access to therapies for those most in need, including those facing terminal diseases like ALS. Here’s how you can help get both passed:

Step 1

  • Click here to contact your Representative asking that they support the Accelerating Access to Critical Therapies for ALS Act.(Read the text of the bill here.)
  • Step 2

  • Click here to contact to your Senators asking that they support the Promising Pathway Act.(Read the text of the bill here.)
  • Click here to read more information about both bills.

    Contact Your Representative To Join The ALS Congressional Caucus

    Above are the current members of the ALS Caucus. Until that list includes every Representative we have more work to do. Here’s how you can help:

    1. If you see that your Representative is a member of the Caucus, let us know and we will send you a social media card to thank them publicly: Click here to email us.
    2. If your Representative is not a member of the Caucus, email us at [email protected] with your zip code and we will send you step-by-step instructions on how to reach out and ask them to join.

    Wondering what else you could ask your member of Congress to support? Click here to learn more.

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