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Welcome to the Revolution
Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.
318107 Bold actions have been taken so far
How much change will you make to find cures for ALS?
Engagement Level 1
Tell Cigna: Approve Coverage for Relyvrio
In Memoriam Video
Test Your ALS Knowledge
Join the Movement and Be in the Know
Check out our weekly updates that you'll be getting in your inbox if you join this movement.
Show who ALS impacts through the Every Community map
Share About the ALS Support Team
Engagement Level 2
Let’s Talk About It
Tweet at your Senators to pass S. 326, incorporating the Elizabeth Dole Home Care Act
Protect South Carolinians from Genetic Discrimination! Pass H. 4218: Genetic Protection!
Elizabeth Dole Home Care H.R.542/S.141
Build Congressional Champions Through the ALS Caucus
Op-ed Guide
Engagement Level 3
Literary Salon
Justice for ALS Veterans Act 2023
Be part of I AM ALS’ 2024 ALS Awareness event!
I AM ALS Support Groups
Request a Panel of People Impacted by ALS
Share Your ALS Helpful Hints
Engagement Level 4
Post-NurOwn AdComm Survey
Appropriations 2023 ACT4ALS
Appropriations 2023 CDMRP
NurOwn Sign-On Statement
Ask Me Anything ALS: Genetic Testing
The Write Stuff Team
Engagement Level 5
Sign up to be an ALS Outreach Advocate
Join an I AM ALS Community Team
Visit Your Representative’s Home Office or Set Up a Virtual Meeting
Visit Your Senators’ Home Office or Set Up a Virtual Meeting
The I AM ALS Peer Support Initiative
Access tools to drive forward ALS legislative priorities
Level up your ALS legislative advocacy
100,000 heroes in our advocate network.
Millions more talking about ALS.
Over 51,000 actions taken to push forward innovative ALS policy.
$55 million increase in federal funding for ALS research.
ALS impacts every community, including yours.
Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.
Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS
Looking for more ways to get involved?
Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.
Clinical Trials
The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.
Community Outreach
The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.
Familial ALS
The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.
Legislative Affairs
The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.
Thank You Squad
The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.
Veterans
The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.
Join us in rewriting the ALS story. Learn about actions you can take through your inbox.
We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!