Write and Share Your ALS Story


Your story is one of the greatest gifts you can share. Detailing how ALS has impacted your life makes a “rare” disease community feel connected, relatable and less lonely.

Take ten minutes to write your journey with ALS.

ALS wins when we wage our movement in the shadows and too few know about our effort to end ALS.

Sharing your story is important! People are more likely to care about an issue if they feel connected to it. Let your family and friends know that a person they care about has been deeply impacted by ALS.

According to a 2018 poll, more than 60% of Americans know nothing about ALS. You can change that by sharing your story. Read more stories here.

You also can use your ALS story to email elected officials about important ALS legislation. Click here to do so.

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