The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
Join us in celebrating the transformative power of art as a source of healing and expression, especially for those affected by ALS. This November, I AM ALS advocates are excited to introduce the Artistry of ALS project, featuring a virtual art gallery—coming soon!—and an engaging Artists’ Panel event. Don’t miss the Artists’ Panel! On November 14 […]
Join this webinar to explore innovative, multidisciplinary approaches in disease modeling, drug testing, and tissue engineering using advanced in vitro systems. Dr. Francesco Saverio Tedesco will present cutting-edge examples, including the development of advanced muscle models for studying muscular dystrophies and designing more efficient, targeted therapies for neuromuscular diseases. Attendees will also gain insight into […]
The Sean M. Healey & AMG Center for ALS at Mass General and Merit Cudkowicz, MD, MSc Chair of Neurology, Massachusetts General Hospital invite you to attend A Virtual Celebration of the Daniella Lipper ALS House Call and PACT Programs: Transforming Patient Care in ALS Please join us to celebrate the establishment of the Daniella […]
Join us for a special screening of LUKi & the Lights, an animated short film designed to help children understand ALS. Hosted by the I AM ALS Community Outreach Team, this free event will take place on Tuesday, November 12th, from 7 PM to 8 PM EST. Sascha Groen and her late husband, Anjo Snijders, who […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join us to hear Dr. Fernando Vieira, CEO and CSO of the ALS Therapy Development Institute, and Dr. Richard Bedlack, Director of the Duke ALS Clinic, share the latest findings from the IGFBP7 ARC Study. This is a rare opportunity to gain insights into cutting-edge research and have your questions answered by two of the […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from Barnes Jewish Hospital in St. Louis, MO, will share essential information and insights about feeding tubes. Don't miss this opportunity to learn and ask questions […]
