Impact of Cultural Beliefs & Acceptance in ALS and Terminal Diseases When: Tuesday, December 10⋅4:00 – 5:00pm Where: Zoom (sign up for more info) The Many Shades of ALS community team brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS. The […]
Register now for an upcoming virtual forum highlighting Critical Path for Rare Neurodegenerative Disease (CP-RND) AMP for ALS Public-Private Partnership (PPP) and its progress toward accelerating new treatments for ALS. This is a continuing series of sessions offering a chance for feedback and questions. This will be an excellent opportunity to hear about key developments, upcoming meetings, and […]
These webinars aim to inform and answer participant questions on the NINDS Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required) RFA# TBD. The goal of this announcement is to support the conduct of scientific research utilizing data from expanded access (EA) for investigational drugs or biological products for patients living […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
Join The Scribes of Strength team as we interview Dr. Dylan Shanahan. Date: November 21, 2024 Time: 5pm-6pm EST In Liberation of Being: Allowing Terminal Illness to Teach Us How to Live, Dr. Shanahan invites readers into a journey of profound resilience and philosophical exploration. Diagnosed with ALS in the prime of his life, Dylan […]
Please join us on Thursday, November 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. James Berry, M.D., M.P.H., and Bob Bowser, Ph.D., will present updates about Access for All in ALS (ALL ALS), share ways to stay connected to news in ALS research, and answer questions from […]
Register to hear the personal accounts of life with ALS and treatment with RADICAVA ORS® (edaravone) from 2 people living with ALS. Moderated by an ALS advocate and volunteer, join these panelists as they share their personal advice and perspectives on navigating their journeys with ALS. Brought to you by Mitsubishi Tanabe Pharma America. Stephanie Cantos Stephanie […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
Join us for November Social Hour. During our time together, we will be celebrating our gratitude and appreciation for the incredible caregivers in our community. For those unfamiliar, social hour is a one-hour gathering where community members can relax, chat, and spend time together. We recognize that fostering a sense of community involves building relationships […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
Join us in celebrating the transformative power of art as a source of healing and expression, especially for those affected by ALS. This November, I AM ALS advocates are excited to introduce the Artistry of ALS project, featuring a virtual art gallery—coming soon!—and an engaging Artists’ Panel event. Don’t miss the Artists’ Panel! On November 14 […]
