The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
About the Program: Join us for our December Learning Series with Dr. Suzana K.E. Makowski, medical director of Compassionate Care ALS. Dr. Makowski will discuss spirituality and its role in ALS, along with where we can find light in the darkness and gratitude as we enter a new season and new year. The Les Turner ALS […]
People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that currently treat these symptoms in a significant or sustained way, and those that do often have unwanted side effects and limited […]
Join us to learn more about the 2025 Lou Gehrig Day/ALS Awareness Library campaign. This initiative encourages libraries nationwide to host events, book displays, and educational programming in honor of Lou Gehrig Day (June 2), raising awareness about ALS and Lou Gehrig’s legacy. The focus will be on engaging communities, educating the public, and supporting […]
Join us on December 17, 2024 at 3pm EST for our final 2024 social hour. Social Hour is a one-hour gathering designed to help community members meet new people and start building connections. It’s a relaxed space where you can chat, unwind, and get to know others, whether you’re reconnecting with familiar faces from our […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS are uniquely suited to benefit from these strategies, but there are important considerations. From the basics of what makes […]
Impact of Cultural Beliefs & Acceptance in ALS and Terminal Diseases When: Tuesday, December 10⋅4:00 – 5:00pm Where: Zoom (sign up for more info) The Many Shades of ALS community team brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS. The […]
Register now for an upcoming virtual forum highlighting Critical Path for Rare Neurodegenerative Disease (CP-RND) AMP for ALS Public-Private Partnership (PPP) and its progress toward accelerating new treatments for ALS. This is a continuing series of sessions offering a chance for feedback and questions. This will be an excellent opportunity to hear about key developments, upcoming meetings, and […]
These webinars aim to inform and answer participant questions on the NINDS Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required) RFA# TBD. The goal of this announcement is to support the conduct of scientific research utilizing data from expanded access (EA) for investigational drugs or biological products for patients living […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
