May 29, 2024 7:00 AM Eastern Time (US and Canada) This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and what is a tracheostomy, how it works, and considerations. Presenter: Susan Brumby
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program! […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program! […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]
National Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in partnership with several stakeholders to operationalize the recommendations of the Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) Public Private Partnership. ALL […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Expanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering the basics of the expanded access (compassionate use) pathway of access to investigational medical products
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program! […]
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program! […]
