DoD ALS Research Program
In 2019, the ALS community helped secure an increase of $10 million per year in funding for ALS research REAL. So, we took a step back to look at how we made it happen. On June 19th, after Congressional testimony and months of Hill visits, the House of Representatives voted to double the current ALS research funding level for the Department of Defense’s Congressionally Directed Medical Research Program from $10 million to $20 million. The Senate Appropriations Committee approved the same increase. The full Senate then voted to approve the increase and then went back to the House for a final vote. Because the funding increase was the same in both the House and Senate bill, it stood a strong chance of being included in the final bill that went to President Trump for his signature. Due to this community’s advocacy along every step of this process we succeeded in making real an extra $10 million in funding for ALS research.
Media Contact: Theresa Garner, [email protected]
We will find cures for ALS. The only question is when. That answer depends on you.
Stay informed on I AM ALS’ progress and what you can do to help us make hope real.
ALS Disability Insurance Access Act of 2019
Twenty ALS advocacy groups collaborated together to thank the more than 360 Congressional members from across the aisle who have co-sponsored H.R. 1407 and S. 578, which would extend Social Security Disability Insurance (SSDI) benefits for patients living with ALS. The ALS community is now calling on Congress for swift passage of H.R. 1407 and S. 578.
Get In. We’re Curing ALS Newsletter
Welcome to the Get in. We're Curing ALS newsletter from I AM ALS including weekly updates on what we were up to the week before, priority actions you can take to help further the movement and community happenings.
Lou Gehrig Day for MLB
Last week was filled with incredible highs and devastating lows for us. A close group of advocates — some currently battling ALS and others who have joined the fight — have been meeting weekly for the last year to push for an official Lou Gehrig Day in baseball. Our tireless efforts paid off with word that all 30 teams officially signed on to support our cause.