DoD ALS Research Program
Over the past two years, the ALS community has helped increase the Department of Defense’s (DoD) Congressionally Directed Medical Research Programs (CDMRP) ALS Research Program from $10 million to $40 million per year in funding for ALS research.
In 2019 we broke down how we made it happen and took similar strategies to make the same doubling of research funding happen in 2020 to be applied in FY21.
On June 19th, 2019 after Congressional testimony and months of Hill visits, the House of Representatives voted to double the current ALS research funding level for the Department of Defense’s Congressionally Directed Medical Research Program from $10 million to $20 million. The Senate Appropriations Committee approved the same increase. The full Senate then voted to approve the increase and then went back to the House for a final vote. Because the funding increase was the same in both the House and Senate bill, it stood a strong chance of being included in the final bill that went to President Trump for his signature.
Due to this community’s advocacy year over year along every step of this process, we succeeded in making real $40 million in funding for ALS research.
Media Contact: Theresa Garner, [email protected]
- Check out I AM ALS’ announcement after Congress increased the Department of Defense’s (DoD) Congressionally Directed Mandated Research Program (CDMRP) ALS Research program to $40M.
- Read Brian Wallach’s 2019 note to the community once the Senate Appropriations Committee voted to increase funding for ALS research.
We will find cures for ALS. The only question is when. That answer depends on you.
Stay informed on I AM ALS’ progress and what you can do to help us make hope real.
Statement on Patient Access to Therapies
While we seek cures, we stand committed to people living with ALS today having a chance to access treatments that could slow disease progression and give them more time. We firmly believe that even one more person with access to an ALS treatment that might work for them is progress.
Lou Gehrig Day for MLB
After a group of advocates impacted by ALS banded together to honor Lou Gehrig and the ALS community and raise awareness for ALS, Major League Baseball announced a league-wide Lou Gehrig Day that will be held yearly on June 2nd.
The Road to Accessing Promising Treatments
As we said last week, I AM ALS will not stand for the status quo when that means tens of thousands of people are diagnosed with ALS and told there is nothing medicine can do. We also recognize that leadership doesn’t mean we have all of the answers. That’s why we spent the last week listening to the ALS community. Here is our proposed response, not to the outcome of a single trial but to everything we see happening in ALS research.