ALS Disability Insurance Access Act of 2019
Twenty ALS advocacy groups collaborated together to thank the more than 360 Congressional members from across the aisle who have co-sponsored H.R. 1407 and S. 578, which would extend Social Security Disability Insurance (SSDI) benefits for patients living with ALS. The bill was recently passed in the Senate and the ALS community is now calling on the House of Representatives for a swift passage of H.R. 1407.
Media Contact: Theresa Garner, [email protected]
- Read Senator Whitehouse’s press release announcing that the bill has passed in the Senate.
- Watch Senator Braun’s speech on the Senate floor after the bill was voted on.
- Read Senator Braun’s press release announcing that the bill has passed in the Senate.
- Read the latest press release
- Read the press release announcing the initial coalition of ALS organizations
We will find cures for ALS. The only question is when. That answer depends on you.
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Get In. We’re Curing ALS Newsletter
Welcome to the Get in. We're Curing ALS newsletter from I AM ALS including weekly updates on what we were up to the week before, priority actions you can take to help further the movement and community happenings.
Lou Gehrig Day for MLB
Last week was filled with incredible highs and devastating lows for us. A close group of advocates — some currently battling ALS and others who have joined the fight — have been meeting weekly for the last year to push for an official Lou Gehrig Day in baseball. Our tireless efforts paid off with word that all 30 teams officially signed on to support our cause.
ACT for ALS
The Accelerating Access to Critical Therapies for ALS Act will make $75,000,000 available in FY 2021 and 2022 as part of a pilot to provide grants to support expanded access programs. It will bring treatments for rapidly progressing diseases for which effective therapies don’t already exist to patients beyond the ongoing clinical trial.