ALS Disability Insurance Access Act of 2019
Twenty ALS advocacy groups collaborated together to thank the more than 360 Congressional members from across the aisle who have co-sponsored H.R. 1407 and S. 578, which would extend Social Security Disability Insurance (SSDI) benefits for patients living with ALS. The bill was signed into law by the President on December 22, 2020.
Media Contact: Theresa Garner, [email protected]
ALS Disability Insurance Access Act of 2019 Passes in the House
- Watch the speeches on the House floor prior to the bill passing.
- Read Congressman Moulton’s press release announcing that the bill has passed in the House.
ALS Disability Insurance Access Act of 2019 Passes in the Senate
- Read Senator Whitehouse’s press release announcing that the bill has passed in the Senate.
- Watch Senator Braun’s speech on the Senate floor after the bill was voted on.
- Read Senator Braun’s press release announcing that the bill has passed in the Senate.
The ALS Community’s Efforts Leading Up to the Passage of the ALS Disability Insurance Access Act of 2019
We will find cures for ALS. The only question is when. That answer depends on you.
Stay informed on I AM ALS’ progress and what you can do to help us make hope real.
A Guide to Organizing Playbook
The Playbook is a step-by-step guide for those who are out to build a movement on how to empower and mobilize a community to end a disease.
Diversity and Inclusion Efforts at I AM ALS
I AM ALS is committed to intentionally addressing the gaps of inclusion and equity in the ALS community. While we can acknowledge there is a lot of work to do, we are here to take the first steps to address these gaps and ensure all people impacted by ALS have the opportunity to receive care and be a part of the revolution.
I AM ALS Navigation Update
For 2021, we aim to expand the reach of community-based navigation services to more people affected by ALS at every step of the experience, with a goal of providing high-quality compassionate support. We also have a renewed focus on improving access to and utilization of Navigation for under-resourced populations across the country.