Twenty ALS advocacy groups collaborated together to thank the more than 360 Congressional members from across the aisle who have co-sponsored H.R. 1407 and S. 578, which would extend Social Security Disability Insurance (SSDI) benefits for patients living with ALS. The bill was signed into law by the President on December 22, 2020.

Media Contact: Theresa Garner, Theresa@iamals.org

ALS Disability Insurance Access Act of 2019 Passes in the House

• Watch the speeches on the House floor prior to the bill passing.
• Read Congressman Moulton’s press release announcing that the bill has passed in the House.

ALS Disability Insurance Access Act of 2019 Passes in the Senate

• Read Senator Whitehouse’s press release announcing that the bill has passed in the Senate.
• Watch Senator Braun’s speech on the Senate floor after the bill was voted on.
• Read Senator Braun’s press release announcing that the bill has passed in the Senate.

The ALS Community’s Efforts Leading Up to the Passage of the ALS Disability Insurance Access Act of 2019

• Watch a video of those impacted by ALS sharing their personal challenges not receiving disability benefits for five months and urging Congress to pass this bill.
• Read the latest press release.
• Read the press release announcing the initial coalition of ALS organizations.