Build Congressional Champions Through the ALS Caucus
The ALS Caucus brings together members of Congress from both sides of the aisle to share experiences, exchange ideas, and work collaboratively to find a cure for amyotrophic lateral sclerosis (ALS). ALS is a progressive neurodegenerative disease that affects the body’s motor neurons causing decreased mobility and eventually leads to death. The ALS Caucus seeks to raise awareness about the challenges faced by ALS patients and their families, think creatively about policy solutions to reduce the negative impacts of ALS, and invest in groundbreaking research to end ALS.
Media Contact: Theresa Garner, [email protected]
- Read a press release from Representative Crow and colleagues announcing the House ALS Caucus
- Read a press release from Senator Coons, Senator Braun and colleagues announcing the Senate ALS Caucus
We will find cures for ALS. The only question is when. That answer depends on you.
Stay informed on I AM ALS’ progress and what you can do to help us make hope real.
Get In. We’re Curing ALS Newsletter
Welcome to the Get in. We're Curing ALS newsletter from I AM ALS including weekly updates on what we were up to the week before, priority actions you can take to help further the movement and community happenings.
Lou Gehrig Day for MLB
Last week was filled with incredible highs and devastating lows for us. A close group of advocates — some currently battling ALS and others who have joined the fight — have been meeting weekly for the last year to push for an official Lou Gehrig Day in baseball. Our tireless efforts paid off with word that all 30 teams officially signed on to support our cause.
ACT for ALS
The Accelerating Access to Critical Therapies for ALS Act will make $75,000,000 available in FY 2021 and 2022 as part of a pilot to provide grants to support expanded access programs. It will bring treatments for rapidly progressing diseases for which effective therapies don’t already exist to patients beyond the ongoing clinical trial.