I am Victoria Purdum
an ALS gene carrier,
living with ALS
5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation.
My name is Victoria Purdum and I live in Maine. 5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My wife, Trudi Chase, is my caregiver. I have limb onset and it started with a drop foot in 2021, then both feet and now my left arm and hand. I cannot stand on my own, as I need help to stand. I cannot walk at all, as I am in a wheelchair 24/7.
I am an I AM ALS mentor and have been matched with someone already.
I take part in I AM ALS zoom meetings as well.
I have a YouTube channel: Victoria Battles ALS