fbpx

I am Vanessa Vilchez-Santos

a family member of someone we've lost to ALS

New Jersey


It has been hard to live without her, but her strength and her attitude to live with a smile until the end made us continue her fight, and bring awareness to others.

My family lost my mom to ALS in 2019, just 3 months after being diagnosed. It has been hard to live without her, but her strength and her attitude to live with a smile until the end made us continue her fight, and bring awareness to others.


More stories

See all stories

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site