fbpx

I am Shaun Kalpakoff

living with ALS

California


We all still have a lot to live for. Lou inspires me to never give up, for my son Ashton.

Lou Gehrig was the first patient advocate for ALS. He showed positivity, determination and gratitude to the world. He famously said “I may have gotten a bad break, but I have an awful lot to live for.” This still rings true today, we all still have a lot to live for. Lou inspires me to never give up, for my son Ashton.

Share Your ALS Baseball Story

Share Your Story


More stories

See all stories

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site