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I am Sarah Gascoigne

a family member in a familial ALS family,
a family member of someone living with ALS,
a family member of someone we've lost to ALS

Illinois


I went to the doctor and ALS was the last thing on their minds because I was so young.

I grew up knowing my family carried a disease called ALS. I didn’t know exactly what this abstract ALS thing was, I just knew ALS was the reason my grandmother passed away. In August 2015 that all changed.

In August of 2015 my dad was diagnosed with ALS. I watched my strong, independent, hardworking dad go from farming and doing everything he loved every day to being completely dependent on my mom’s care. In June 2018, we lost my dad. ALS took a father, husband, and grandpa.

In October 2019, I ran the Chicago Marathon, a goal I had always hoped to achieve. Following the marathon, I developed a limp and could no longer do my favorite thing, run. I knew something was wrong. I went to the doctor and ALS was the last thing on their minds because I was so young; I was told over and over again it was a running injury. They were wrong, In August of 2020 at the age of 26 and just 5 years after my dad, I received my ALS diagnosis.

My life is so different than I ever imagined it would be. I dreamed of being a mom and a wife, traveling the world, and having a long happy and healthy life. Today, I dream of the day there is a treatment so I can have those dreams again. Today I dream of a day there is a treatment so my family doesn’t have to lose more loved ones.

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