fbpx

I am Sara Turner

a family member of someone living with ALS

Ohio


Seeing him reduced to sitting in a wheelchair not being able to move, talk or do anything for himself has been absolutely terrible.

My father is living with ALS. He is only in his early 50’s. He had so much time left to be able to do things with his family and then he was diagnosed after having some muscle weakness and twitching. He had to stop working after being such a hard worker doing physical labor but he loved his job. He was always a handyman who could fix just about anything.

Seeing him reduced to sitting in a wheelchair not being able to move, talk or do anything for himself has been absolutely terrible. He struggles to swallow and chokes on water. He wants so badly to communicate with us but he can’t. I really wish our government would stop dragging their feet on getting medication approved that could potentially help people living with this awful disease.


More stories

See all stories

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site