I am Sara Turner
a family member of someone living with ALS
Seeing him reduced to sitting in a wheelchair not being able to move, talk or do anything for himself has been absolutely terrible.
My father is living with ALS. He is only in his early 50’s. He had so much time left to be able to do things with his family and then he was diagnosed after having some muscle weakness and twitching. He had to stop working after being such a hard worker doing physical labor but he loved his job. He was always a handyman who could fix just about anything.
Seeing him reduced to sitting in a wheelchair not being able to move, talk or do anything for himself has been absolutely terrible. He struggles to swallow and chokes on water. He wants so badly to communicate with us but he can’t. I really wish our government would stop dragging their feet on getting medication approved that could potentially help people living with this awful disease.