I am Sandra Martoccia
a family member of someone we've lost to ALS,
caring for someone living with ALS
I never wanted him to forget he wasn’t just a man with ALS. He was my man.
My friend likes to tell this story and I always love to hear it. When my 48 year old former marathon running, surgeon husband was no longer able to move anything, but his neck, I moved him by Hoyer lift to a lift chair in the morning and back to an adjustable bed at night. Sometimes he’d slip down in the bed and I’d reposition him by placing each foot foot on my chest, showing as much cleavage as possible, and looking him in the eye. We’d both chuckle a little each time. I never wanted him to forget he wasn’t just a man with ALS. He was my man. We didn’t have much time together as we had only met seven years before he was diagnosed, but we made it count. He’d been in a very unhappy marriage before we met and it was a relief to all of us that he was in a happy relationship for his last years.