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I am Ron Raymond

living with ALS

New York


I've been living with ALS since 2000.

I’ve been living with ALS since 2000. I’m 67 years old and live with my wife in upstate NY. ALS is a horrible disease and it’s only because I have a loving wife and very good people who help us daily that makes it manageable. Plus I’ve been very fortunate to have excellent medical care.


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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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