To see such a strong independent man slowly lose his independence and quality of life, was beyond imaginable. Such a cruel disease.
I won't live to see the benefits that will come about from this research, but others will. Others like my children and grandchildren.
I came to see that in my mind, I am free. It is the one part of me that ALS can't tame. My mind is a mighty force, it's own universe apart from my disease.