I am Linda Sullivan
a family member of someone we've lost to ALS,
someone who cared for a person we've lost to ALS
We were devastated when we got the diagnosis and our lives were changed forever.
My husband, Dennis Sullivan, was diagnosed with ALS on December 9, 2019 and passed away six short months later on June 12, 2020. We were devastated when we got the diagnosis and our lives were changed forever. He progressed so fast. COVID hit in March and thankfully I (Linda, wife) was able to work at home and be his caregiver as well as wife. We grew so much closer during this time. COVID limited visitors and we were so afraid of it. We stayed put. He was unable to walk by March and could barely eat and talk at the end of his journey. He was bedbound by the middle of April and then we called Hospice. His mind was fully aware of everything; however, his body was not. No one deserves this devastating disease.
Through everything, his love of the Washington Nationals stayed true. We were very sad Spring training was canceled in 2020. He did not live to see the Nats play in 2020, but I’m sure he was watching from Heaven when they played their first game in July 2020. We loved to watch the repeats of the Nats games during COVID, especially when they won the World Series. We attended games at Nats park and loved to watch them play on TV. It was something we always did together. His love of the Nats will always hold a special place in my heart. I’m so happy that MLB will finally honor all ALS warriors, both past and present.
ALS needs more awareness and a cure must be found NOW! There is no time to wait. He didn’t lose his battle with ALS, he won his freedom from it. He’s got the best seat in the world to cheer his Washington Nationals on!