I am Lavon Ostrick
living with ALS
Oregon
Up until then I had only heard of ALS and Lou Gehrig. I thought that was something that only happen in rare instances.
For awhile I was thinking I had a sore throat. Then I was sent to an ENT, he had me put air in my cheeks. He easily pushed them in and declared it was ALS.
That was a surprise because up until then I had only heard of ALS and Lou Gehrig. I thought that was something that only happen in rare instances.
Since then I have learned that ALS is not all that rare. People live in wheel chairs or flat on their back. People cannot enunciate clearly. A man asks for ALS research to be funded so that he can see his eight year old daughter grow up. People choose “death with dignity” because they see no end to having ALS.
Everyone is being asked to contact their Senators and Representatives. Some Senators and Representatives have had the heart to hear and commit to support ALS research.
The ALS community is begging the US Government to pass bills to help fund ALS research.
In each case ALS marches on at its own pace!
Thus far ALS is always WINS!
