fbpx

I am Lakeia Nard

a family member of someone living with ALS

Kentucky


King’nazir Gates is five years old. He suffers from the sptlc2 gene mutation putting him under pediatric/juvenile ALS.

King’nazir Gates is five years old. He suffers from the sptlc2 gene mutation putting him under pediatric/juvenile ALS. Working endlessly with Researchers and Doctors to find a treatment and cure. In my son’s honor Melanin Children Matter Inc was born. Servicing children, healing families and educating society while enhancing awareness surrounding childhood rare diseases — melaninchildrenmatter.org.


More stories

See all stories

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site