I am Kate Nycz
living with ALS
Massachusetts
As I started to research and reach out for resources, I found it was not a rare disease affecting old white guys anymore, but there were a lot of strong young women like myself being taken out by this menace.
On the day Stephen Hawking died from ALS I began my journey with this beast of a disease. I was busy planning my wedding (and the rest of my life) when I was handed a death sentence. At 32 it was hard to accept the shocking news of this old white guy disease. As I started to research and reach out for resources, I found it was not a rare disease affecting old white guys anymore, but there were a lot of strong young women like myself being taken out by this menace. I was told getting pregnant would speed up disease progression, that I had 2-5 years to live, and that there was no cure. What gives me hope is working with other strong women to raise awareness and push for treatments and a cure.
