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I am Jerry Tobias

living with ALS


I was a firefighter for 29 years.

I was a firefighter for 29 years. I was diagnosed on June 9th, 2016 — my 37th anniversary. My doctor told me to retire because of the stress of my job. … I’m still talking and walking, though I use an UPWalker and I have trouble with words. God is in control and I don’t worry.


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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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