I am Jennifer Lewis
living with ALS
Illinois
This week is my first week of Relyvrio. I hope it makes some difference in my life. We shall see.
As the Pandemic crashed into our lives in 2020 my family was impacted, like many people.
My daughter became a travel nurse, & my son was attacked in the riots of Chicago. I had 5 different jobs as a Chef in 6 months and …what I thought to be stress? Was ALS creeping in.
A new teaching job as a Chef Instructor was a step in the direction of getting back to normal in the pandemic, but my speech was beginning to slur. Yet, I could bake, and bake and teach and teach. But then all of sudden I could not speak & was told by a nurse to go to the ER.
March 3, 2021 I was diagnosed with the possibility of having Bulbar ALS.
I landed at my third hospital and third neurologist telling me the same thing: “You have ALS.” But I do not have the gene. I AM STILL IN SHOCK, MY FAMILY & FRIENDS TOO.
The photo I included is from November 2022, Edinburgh, Scotland. I decided traveling with my children would be an important thing to do. QUICK while I can.
I made the right choice. February 2023… brings me challenges with my walking & breathing.
I have lost 90% of my speech now.
Every day is an unknown.
This week is my first week of Relyvrio. I hope it makes some difference in my life. We shall see.
Thank you for this opportunity to share my story.
