I am Gwen Petersen
living with ALS
California
Nothing in ALS is a straight line, but the intent behind these tools is to make the journey a little less treacherous.
I AM ALS patient advocates don’t talk about change — we make change. An example of this is PaCTD Rating Criteria, part of the very first patient-centric ALS Signal: Clinical Research Dashboard. Born out of wanting to improve the clinical trial experience, these journey tools were created by those of us who walk the path: patients. Nothing in ALS is a straight line, but the intent behind these tools is to make the journey a little less treacherous.
