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I am Gudjon Sigurdsson

living with ALS

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I will not let ALS stop me from living my life. ALS is not a death sentence. It’s a sentence to live and enjoy every moment.

Since my diagnosis in 2004, I’ve been fighting for human rights. I will not let ALS stop me from living my life. ALS is not a death sentence. It’s a sentence to live and enjoy every moment.

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Madelyn Goldstein

In his final days Greg still tried giving us his contagious smile. By that time, his facial muscles had deteriorated, when he tried to smile it was as if his eyes twinkled and smiled for him.

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Abby Leonard

Never question if your voice matters. It can help build a movement

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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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