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I am Greg Heydet Sr

living with ALS

Pennsylvania


I continue to fight ALS both verbally and physically.

At 51, I was diagnosed with ALS. I am now 64. I continue to fight ALS both verbally and physically.

I’ve traveled to Washington DC a few times to represent all pALS for the need of access to treatments in the FDA. It’s a disgrace how the world ignores the urgency of treatments to a disease that is 100% fatal. We now have treatments that may help many.

Allow us access, please. I have seen NurOwn work.


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