I am Dora Sementilli

living with ALS

New York

9/24/20 my life changed forever.

Hi my name is Dora and I am ALS. 9/24/20 my life changed forever. After one year of probing with what was wrong with me I was diagnosed with an inhumane disease that breaks down your nerve cells. It reduces functionality in your muscles. THERE IS NO CURE!!

ALS affects all muscles under voluntary control and I (we) ultimately will lose strength, ability to eat, speak, grasp things move and breathe. It’s time today for a change. ALS was discovered in 1869. We demand to be heard and pass all bills and to have FDA approve all drugs so we don’t die within months or years of being diagnosed.

More stories

See all stories

Back to Top