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I am Debra Hallisey

an ALS advocate with no connection to ALS,
living with ALS

New Jersey


I am an advocate for family caregivers of all ages.

I am an advocate for family caregivers of all ages. I first began to understand the challenges this disease presents to everyone in the family when I learned of and began supporting, Hope Loves Company. It is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease. https://www.hopelovescompany.org/


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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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