I am Deborah Stiewing
a family member of someone living with ALS
She is too young! She just got married! She wants children! Her whole life is in front of her!
No! No! Please dear god! It can’t be ALS! I thought for sure at the worst it was MS! She is too young! She just got married! She wants children! Her whole life is in front of her! Why! Why!
These were the thoughts of a mother! In the beginning we lived and breathed ALS!
But as time went by we started to focus more on the disease and how to battle it! How we can advocate with our daughter to get the word out and find a cure because that is what she does every day she advocates every day for her self and others battling ALS!
I don’t know how long I will be able to use my hands or how long I will be able to talk. I don’t know when my husband will lose his wife. I don’t know when my children will lose their mother.