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I am Craig Dierksheide

living with ALS

South Carolina


I was given 6 months to live on November 5, 2019 ... still here!

I was diagnosed with ALS on September 11, 2018. I now am on a BiPAP full-time, 24/7. I was given 6 months to live on November 5, 2019 … still here! I turned 63 on March 19, 2021.

I continue to advocate to put an end to ALS and did a drive-by birthday party and raised $3700, matched it and sent $7500 to my local ALS Association.


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