I am Cari Meystrik
living with ALS
I feared I would not see my children finish grade school. I am so blessed to have all four in college and even one married.
I have been fighting ALS for over 22 years. I was diagnosed at the age of 28 when my oldest child was five and my youngest not even born yet. When I was given my death sentence of 2-5 years, I feared I would not see my children finish grade school. I am so blessed to have all four in college and even one married. Through the years, I have had the opportunity to participate in many research studies, be an advocate and voice for the ALS community, raise many fundraising dollars for research and patient care, and to live life to the fullest extent possible surrounded by the love and support of my family and friends. Only God knows the number of my days, so as long as he gives me breath, I will keep living and keep fighting until we have a cure.
I don’t know how long I will be able to use my hands or how long I will be able to talk. I don’t know when my husband will lose his wife. I don’t know when my children will lose their mother.