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Canceled Participation in the National ALS Registry

Virtual

About the Program: ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, and how to fight it. Join us for our January ALS Learning series with Reshma Punjani and Janie Gobeli to learn how the National ALS Registry […]

Caregivers: Angels in Agony

Virtual

About the Program: Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at the same time challenging, exhausting, rewarding, and full of unexpected emotions. Linda Levine is a caregiver for her husband David Buseck, a person with ALS. […]

Event Series Caregiver Only Support Group

Caregiver Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Event Series Chicagoland Support Group

Chicagoland Support Group

Virtual

Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Event Series Caregivers-Only Support Group

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Event Series Caregiver Only Support Group

Caregiver Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Event Series Chicagoland Support Group

Chicagoland Support Group

Virtual

Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the […]

Observational Studies Help in Quest for Effective ALS Therapies

Virtual

About the Program: In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can create resources that aid the ALS community in the present and for years to come. About the Speaker: Dr. Berry leads the Massachusetts General Hospital […]

Free

Hope Through Caring Gala

Radisson Blu Aqua Hotel 221 N Columbus Dr, Chicago, IL, United States

Radisson Blu Aqua Hotel, Chicago Saturday, April 5 The Hope Through Caring Gala brings together the top minds in ALS research and care, advocacy, industry, and, most importantly, people living with ALS and their families, for one of Chicago's most elegant and prestigious black-tie optional events of the year. Save the date for Saturday, April 5, for […]