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A new CIRM funded clinical trial transplanting stem cells releasing GDNF into the motor cortex of patients with ALS

Virtual

EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute,  has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed […]

We Need to Do Better: Strategies to Identify and Validate EFFECTIVE ALS therapies and Accelerate the Translation

Virtual

Zoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event:  We Need To Do Better: Strategies to Identify and Validate EFFECTIVE ALS Therapies and Accelerate Translation Dr. Lyle W. […]

Free

Antisense Oligonucleotide Therapy for ALS

Virtual

We are excited to host EverythingALS Community Event:  Antisense Oligonucleotide Therapy for ALS.   We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community.   The meeting will be on Wednesday, March 30, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]

New Gene Therapy for ALS

Virtual

We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community.   The meeting will be on Wednesday, April 13, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central Time -7:00pm Eastern Time The meeting will be approximately 45-60mins long followed by […]

Augmentative communications program for ALS

We are excited to host EverythingALS Community Event:  Augmentative communications program for ALS.   We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community.   The meeting will be on Wednesday, April 27, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]

Free

Moving from a few genes to a genetic architecture for ALS and the insights it provides

Virtual

About the Event Michael Snyder, Ph.D. Title:  Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford University School of Medicine Bio:  977 B.A, Chemistry and Biology, University of Rochester, NY 1978-1982 Ph.D. California Institute of Technology, CA Advisor: Dr. Norman Davidson […]

Free

Immunity, Virus, and the Role of Inflammation in ALS

Virtual

About the Event In this webinar our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talks about Immunity, Virus, and the Role of Inflammation in ALS. We look forward to seeing you there! To Register:  EverythingALS.org/research Questions:  Info@EverythingALS.org RSVP

Free

ALS-Unmeet Needs

Virtual

Time & Location Jun 08, 4:00 PM zoom call

Free

Technology for ALS Living and Voice Banking

Virtual

Louisiana native Michael Holoway is a perfect addition to the Team Gleason Technology program. His experience in leadership, management and customer service is incredibly valuable for Team Gleason’s mission, but also critically important to the ALS community. In joining Team Gleason, Michael said, “the ability to bring positive change into people’s lives is the most […]

Free

ALS at all ages

Virtual

Time & Location Jul 20, 4:00 PM Zoom call About the Event EverythingALS is honored to announce our future guest; Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women […]

Free

How do we track ALS progression, and why does it matter

Virtual

About the Event Dr. Christina Fournier is an Associate Professor of Neurology at Emory University.  She is the director of the Atlanta VA ALS Clinic, co-director of the Emory ALS Center, and Emory Neuromuscular Division director.  Her clinical work is focused on the care of patients with ALS and neuromuscular disorders, and her research interests […]

Free