The ALS Association Golden West Chapter is dedicated to the fight against ALS in many ways, including funding global research efforts, supporting scientific and clinical collaboration, connecting people with ALS to clinical trials, partnering with multidisciplinary ALS clinics and centers, educating the public about ALS, providing professional care management services to families facing ALS, pursuing important public policy initiatives, and bringing the ALS community together.
The Golden West Chapter’s compassionate Care Services team provides expert advice and assistance for people living with ALS, free of charge. Our knowledgeable and dedicated Regional Care Managers help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. Support groups throughout our service area provide practical solutions for everyday challenges and a connection with others living with ALS. Medical professionals associated with more than 22 multidisciplinary ALS specialty clinics supported by the Chapter facilitate clinical trials and ALS studies. This proven model of robust, proactive, multidisciplinary care helps people live longer and better with ALS while also advancing the search for treatments and a cure.
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin […]
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or Kkelsey@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness, […]
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness, […]
Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
Corte Madera - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!