Select Page

ALS TDI Community Conversations

Virtual

Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion […]

Free

ALS TDI Walk for Research

Zervas Elementary School 30 Beethoven Ave, Waban, MA, United States

Join us on Sunday, August 28, 2022, for the Walk for Research! Enjoy a four-mile walk through Newton, MA. The walk proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to End ALS. Sunday, August 28, 2022 | 10am  Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468

ALS Unfiltered

Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug […]

Free

ALS Town Hall: Meet Your ALS Orgs

Virtual

ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and […]

Free

ALS TDI Summit

Virtual or In Person

Register to Attend the ALS TDI Summit! A free event for the ALS community On Friday, October 14, 2022, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees […]

White Coat Affair

Sheraton Boston Hotel 39 Dalton Street, Boston, United States

Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the progress of research toward ending this disease and need to continue the fight. The White Coat Affair gala is a powerful evening that […]

Town Hall: Friendships and ALS

Virtual

One of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!

Young Faces of ALS (YFALS) Town Hall

Virtual

Discussion on Family and ALS Hosted by Young Faces of ALS and Her ALS Story Tuesday, March 21, 2023 | 6:00 - 7:00pm EDT Although family dynamics are always different, one thing most of us have in common is wanting to find ways to best support each other through the good and bad times. On March 21st, […]

Free

The ALS Research Collaborative (ARC) and ARC Data Commons

The ALS Research Collaborative (ARC) and ARC Data Commons Discussion and demo led by Dr. Fernando Vieira Thursday, April 6, 2023 | 3:00 - 4:00pm EDT On Thursday, April 6, 2023 at 3:00 pm ET, join a special ALS TDI Town Hall to hear Dr. Fernando Vieira, CEO and CSO at ALS TDI, provide an overview […]

Free

ALS TDI Community Conversations

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series, […]

Intimacy and ALS

Intimacy and ALS Led by members of the ALS community Tuesday, April 18, 2023 | 5:30 - 7:00pm EDT From dating and relationships to sexuality and your sex life, ALS changes a lot. This special 1.5-hour-long ALS Town Hall will attempt to cover the many ways that intimacy can be affected by ALS, while also discussing how […]