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I AM ALS Co-Founders Share Story of Resilience at Chicago Ideas

Chicago Ideas  -  November 7, 2019
Brian and Sandra were blindsided when diagnosed with ALS. Instead of sinking into despair, they founded I AM ALS with the goal of finding the cure that will save his and so many others lives.
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The TODAY Show Talks About ALS And Our Fight

The TODAY Show  -  October 13, 2019
Yesterday, the TODAY Show’s closer was about our fight to end ALS. It beautifully showed that our fight is filled with resiliency and hope. That our fight is about making the possible real.
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Meet the I AM ALS Thank You Squad by Cathy Collet

Cathy Collet  -  October 23, 2019
Thank you for bringing authenticity, strength, and a belief that we have the power among us to cure ALS. It is only because of this shared belief that we can accomplish so much together every day.
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A Note From Our Board: I AM ALS Becomes a 501(c)(3) Organization

Louise Langheier  -  October 18, 2019
My name is Louise Langheier and I am the Board Chair of I AM ALS. We built the board with patients, those who have been in the ALS fight, and new partners who will bring fresh and diverse perspectives to the work.
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Changing Tides: FDA and I AM ALS Meet to Discuss FDA Guidance

Sandy Morris  -  October 4, 2019
On Monday, September 23, 2019, was that the FDA ALS Guidance document, at last, was finalized! The recommendation document was a compilation of so many ALS advocate voices since 2013.
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Increasing Enrollment in ALS Clinical Trials: Four Things Patients Need

Aditi Narayan Minkoff  -  October 3, 2019
In February 2019, Ipsos launched a national survey on behalf of I AM ALS to assess ALS patients’ knowledge of, barriers to enrollment in, and ways to eliminate barriers to clinical trials.
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Father of 2 Starts Organization to Save His Life and Others

PEOPLE  -  September 26, 2019
Despite what the future may have in store, Wallach is fighting for the chance someone else years from now could be spared from what he and his family have gone through since his diagnosis.
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Meet Our Chief Executive Officer: Danielle Carnival

Danielle Carnival  -  September 22, 2019
I am eager to work together to realize a new reality for ALS patients. I believe we can deliver on the hope felt by the ALS community to make real the day we can look at a pALS and say “she had ALS.”
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Meet Our Director of Navigation: Aditi Narayan Minkoff

Aditi Narayan Minkoff  -  September 18, 2019
In my career, I've focused on understanding and responding to the needs of patients and caregivers - to empower them to be active participants in their health care and fight on their behalf for better care and support.
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