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Legislative Affairs Committee: Empowering ALS Champions

Christa Thompson  -  May 7, 2019
I got involved in I AM ALS’ legislative affairs subcommittee because I knew that the way to rewrite the ALS story is to organize and mobilize a network of advocates, and that is exactly what we’re doing.
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Clinical Trials Committee: Building New Paths

Sandy Morris  -  May 7, 2019
This group was formed by individuals with a fierce determination to accelerate the access to treatments by ALS patients, no matter the pathway. Right to Try, Expanded Access, Clinical Trials--should work for pALS.
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Community Outreach Committee: Connecting the Dots

Steve Haberstroh  -  May 7, 2019
Our subcommittee of 15 or so patients (pALS) and caregivers (cALS) strive to bring the ALS community together to work as one force and provide valuable resources to patients and their families.
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Community Advisory Council: Leaders in the Fight

Brian, Cathy, and Sandy  -  May 7, 2019
We are patients, caregivers, advocates, and beyond. We talk every week about our hopes and our dreams and how we can augment the amazing work going on in every corner of our fight.
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Beyond the Ice Bucket Challenge. How a Real Hero Seeks to Find a Cure

The Glu  -  April 24, 2019
When we saw the two realitiesーthe hopeless and the hopeーwe resolved that we had to be a part of making a cure real as soon as possible, for my husband, my family and all the families out there fighting this disease.
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PRESS RELEASE: ALS Community Launches Campaign Urging Congress

I AM ALS  -  April 12, 2019
19 ALS Advocate Groups Urge Swift Passage Of SSDI Early Benefits Legislation In The U.S. House And Senate. In its first week alone, over 30 lawmakers were thanked by 19 ALS advocacy organizations.
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PRESS RELEASE: I AM ALS Congressional Testimony

I AM ALS  -  April 9, 2019
Co-Founder Brian Wallach testified in front of the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies on the need for increased funding for ALS research.
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Brian Talks I AM ALS with the 21st Show

The 21st Show  -  April 1, 2019
When you get diagnosed with a disease like ALS, you don’t stop being the person that you were a day before your diagnoses and I’m reminded of that on a daily basis. - Co-founder Brian Wallach
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Yale Alum Founds ALS Nonprofit Organization

Yale Daily News  -  March 8, 2019
I AM ALS is about empowering patients to create a movement to advance their health and access. We want it long-term to be a model for all orphan diseases that don’t have access to the resources needed to find a cure.
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