I AM ALS in the Media
New father’s ALS fight inspires others with hope – Today Show October 13, 2019
Race to a cure for ALS – CBS Sunday Morning July 11, 2021
‘I’m going to prove you wrong’: How a D.C. power couple used an ALS diagnosis to create a political juggernaut – STAT News January 11, 2022
He Was Given 6 Months to Live. Then He Changed D.C. – Politico January 14, 2022
A Race to Rethink Care After a Dire Diagnosis – New York Times February 1, 2022
To help patients like him, former Obama staffer helps pass law for ALS patients to get quicker access to drugs – Chicago Tribune February 18, 2022
Former Obama staffer fights to raise ALS awareness after devastating diagnosis – PBS NewsHour December 30, 2022
Young Father Defying the Odds of His ALS Diagnosis Says the Disease Is ‘No Longer Hopeless’ – People Magazine March 17, 2023
He was diagnosed with ALS. Then they changed the face of medical advocacy – NPR June 30, 2023
Tackling ALS Like a Presidential Campaign – Psychology Today August 10, 2023
Tackling ALS Like a Presidential Campaign – Psychology Today October 12, 2023
Fighting the good fight against ALS – CBS Sunday Morning November 26, 2023
Can Hope Ever Be a Form of Medicine? – New York Times December 25, 2023
Kenilworth couple, former Obama staffers, return to White House on a special mission – WGN 9 Illinois January 30, 2024
Scenes From the White House Screening of “No Ordinary Campaign” – Katie Couric January 31, 2024
New ALS Treatments Face Regulatory Uncertainty (brief IAA mention) – Biospace March 4, 2024
Billionaire MacKenzie Scott expands donation promise to give away $640 million – Good Morning America March 20, 2025
This $158,000 Drug Likely Doesn’t Work. Why Was It Approved? – Bloomberg
