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Meeting with your Senator or Representative? – Things to Know Before You Go

Kathleen Rooney  -  February 13, 2020
This week more than 30 patients, caregivers, loved ones, and advocates met during the third annual More Than Our Stories event. Here is what we learned.
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I AM ALS Aims Even Higher in Their Second Year: 2020 Commitments

I AM ALS  -  February 10, 2020
This past year this community set out to change the world. We set out to make real treatments and cures. This year will be no different. ALS does not take a break, so neither will we.
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How Will We Make Treatments and Cures Real?: Funding and Advocacy

I AM ALS  -  February 5, 2020
There is a time when you must stand up and demand change and then work like mad with anyone who is willing to champion your mission to get that change to happen. That time is now in ALS.
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What is a Navigation Program?: A Q+A With Our Director of Navigation

Aditi Narayan Minkoff  -  February 5, 2020
Launching by May 2020, this program will be a helping hand in connecting those it serves to the programs and services that best fit their needs and be a partner every step of the way in their ALS journey.
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In a Race Against Terminal Illness, Former Obama Staffer With and His Wife Find New Hope

Chicago Tribune  -  January 24, 2020
It’s time, the couple said, to switch ALS conversations from a diagnosis rooted in darkness to the faces of people bravely moving forward.
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I AM ALS Marks First Anniversary of a Movement That Will Cure ALS

I AM ALS  -  January 22, 2020
In 365 days we have doubled ALS research funding for a DoD program, took over Times Square, partnered with leading organizations like the Chan Zuckerberg Initiative, and so much more.
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I AM ALS Turns 1: A Year In Review and Our Year Ahead

Danielle Carnival  -  January 21, 2020
Tomorrow is one year since I AM ALS launched. When I joined in September, I was inspired by the patient-led movement that this organization has built -- one that is truly led by the community.
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Understanding the Needs of People Affected by ALS

Aditi Narayan Minkoff  -  December 20, 2019
On November 5, 2019, I AM ALS launched a survey designed to understand the challenges experienced by ALS patients, caregivers, loved ones and surviving caregivers as a result of their diagnosis.
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I AM ALS Principles for Access to Promising Therapies

Danielle Carnival  -  December 19, 2019
There is a time when you must stand up and demand change and then work like mad with anyone who is willing to champion your mission to get that change to happen. That time is now in ALS.
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