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Changing Tides: FDA and I AM ALS Meet to Discuss FDA Guidance

Sandy Morris  -  October 4, 2019
On Monday, September 23, 2019, was that the FDA ALS Guidance document, at last, was finalized! The recommendation document was a compilation of so many ALS advocate voices since 2013.
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Increasing Enrollment in ALS Clinical Trials: Four Things Patients Need

Aditi Narayan Minkoff  -  October 3, 2019
In February 2019, Ipsos launched a national survey on behalf of I AM ALS to assess ALS patients’ knowledge of, barriers to enrollment in, and ways to eliminate barriers to clinical trials.
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Father of 2 Starts Organization to Save His Life and Others

PEOPLE  -  September 26, 2019
Despite what the future may have in store, Wallach is fighting for the chance someone else years from now could be spared from what he and his family have gone through since his diagnosis.
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Meet Our Chief Executive Officer: Danielle Carnival

Danielle Carnival  -  September 22, 2019
I am eager to work together to realize a new reality for ALS patients. I believe we can deliver on the hope felt by the ALS community to make real the day we can look at a pALS and say “she had ALS.”
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Meet Our Director of Navigation: Aditi Narayan Minkoff

Aditi Narayan Minkoff  -  September 18, 2019
In my career, I've focused on understanding and responding to the needs of patients and caregivers - to empower them to be active participants in their health care and fight on their behalf for better care and support.
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Clinical Trials: FDA ALS Guidance Recommendations

Sandy Morris  -  September 13, 2019
We are incredibly grateful for the opportunity to meet with the FDA leaders on September 26th to discuss the FDA ALS Guidance Document that is set to be updated this month.
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Faces of ALS: Find the Good Stuff by Bryan Wayne Galentine

Bryan Wayne Galentine  -  September 13, 2019
When I decided to take on the role of ALS Advocate, I made it my mission to “use my voice” and platform to point as many people living with ALS and their support teams to resources as possible.
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One Step Closer to $10 Million in New Funding for ALS Research

Brian Wallach  -  September 13, 2019
Yesterday we took another major step towards making an increase of $10 million per year in funding for ALS research REAL. Today, we want to take a step back and look at how we got here and what this means.
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Faces of ALS: The Fight of My Life by Juan Reyes

Juan Reyes  -  August 9, 2019
Why do I fight? I fight against ALS because I experience it every day. Since my diagnosis on Oct 14, 2015, I have been in the fight for my life. I cannot sit idly by; it is not in my nature nor my family’s.
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