Skip to Content


Our 2020 Congressional Written Testimony

Brian Wallach  -  March 24, 2020
Yesterday, a year after initially testifying before Congress, I submitted written testimony to the House of Representatives on behalf of tens of thousands of ALS patients, loved ones, and advocates. Read it here.
Read More

COVID-19 Recommendations for the ALS Community

Aditi Narayan Minkoff  -  March 13, 2020
If you or someone you know has ALS and is currently experiencing symptoms of COVID-19, please contact your healthcare provider immediately. Here is pertinent info for the ALS community regarding SARS-CoV2.
Read More

Former Obama Staffer Seeks ALS Cure

CNN  -  February 21, 2020
CNN's Human Factor sat down with Brian Wallach to discuss his ALS story, one of tens of thousands battling ALS and highlight our fight for cures.
Read More

Meeting with your Senator or Representative? – Things to Know Before You Go

Kathleen Rooney  -  February 13, 2020
This week more than 30 patients, caregivers, loved ones, and advocates met during the third annual More Than Our Stories event. Here is what we learned.
Read More

I AM ALS Aims Even Higher in Their Second Year: 2020 Commitments

I AM ALS  -  February 10, 2020
This past year this community set out to change the world. We set out to make real treatments and cures. This year will be no different. ALS does not take a break, so neither will we.
Read More

How Will We Make Treatments and Cures Real?: Funding and Advocacy

I AM ALS  -  February 5, 2020
There is a time when you must stand up and demand change and then work like mad with anyone who is willing to champion your mission to get that change to happen. That time is now in ALS.
Read More

What is a Navigation Program?: A Q+A With Our Director of Navigation

Aditi Narayan Minkoff  -  February 5, 2020
Launching by May 2020, this program will be a helping hand in connecting those it serves to the programs and services that best fit their needs and be a partner every step of the way in their ALS journey.
Read More

In a Race Against Terminal Illness, Former Obama Staffer With and His Wife Find New Hope

Chicago Tribune  -  January 24, 2020
It’s time, the couple said, to switch ALS conversations from a diagnosis rooted in darkness to the faces of people bravely moving forward.
Read More

I AM ALS Marks First Anniversary of a Movement That Will Cure ALS

I AM ALS  -  January 22, 2020
In 365 days we have doubled ALS research funding for a DoD program, took over Times Square, partnered with leading organizations like the Chan Zuckerberg Initiative, and so much more.
Read More
Back to top