ALS Signal – Explore ALS Clinical Research, Trials and Studies
About the ALS Signal Dashboard
Welcome to ALS Signal designed for and by those living with and impacted by ALS. We are so glad you want to learn more about clinical trials. This tool provides an overview of treatments and supplements that are being tested, as well as some observational studies for those in familial ALS families. As with all medical decisions, you should consult your physician before making any changes to your treatment regimen. Being armed with this information about ongoing and upcoming research and studies gives us hope. We truly wish the same for you. – Nadia Sethi (surviving caregiver to partner we’ve lost to ALS), Sandy Morris (living with ALS) and Cali Orsulak (caregiver to partner living with ALS).
Here’s a little more on what you can expect to see in this dashboard…
- Clinical Research: Ongoing and upcoming clinical research being done around the world.
- Canada & US Trials: Ongoing and upcoming clinical research and expanded access programs available in Canada and the United States.
- Genetic ALS Observational Studies: Ongoing and upcoming ALS observational studies being conducted around the world for ALS gene carriers and people related to someone with ALS.
If a study is missing from ALS Signal, please email [email protected].
You might find these helpful:
Expanded Access Programs in the US
This is a list of ALS clinical trials that currently offer expanded access in the US.
Right to Try Fact Sheet
This handout from the FDA provides a brief overview of how and whether you may be eligible to obtain a treatment through Right to Try.