We're putting an end to ALS. Until that day, we're here to help you through it

Spanish Language ALS Resources

For Spanish-speakers impacted by ALS, a language barrier can complicate the process of getting an ALS diagnosis and finding resources and support, which can be a seemingly insurmountable hurdle to accessing care.

What Causes ALS?

This article from Your ALS Guide shares potential causes of sporadic and familial ALS.

What is ALS?

This video gives you a primer on ALS in 60 seconds.

Five Myths About ALS

This article from The ALS Association shares common myths on ALS.

Intro to ALS

This introductory guide from The ALS Association discusses how to live with ALS.

Stages of ALS

This article from ALS News Today dives into the different stages of ALS.

Limb and Bulbar Onset ALS

This article from the ALS Therapy Development Institute shares information on the two most common types of ALS: limb-onset and bulbar-onset.

Understanding Veterans’ Risk for ALS

This article from I AM ALS helps you understand the connection between Veterans and ALS.

Pathways to ALS

This article from the Muscular Dystrophy Association digs into the possible causes of both sporadic and familial ALS.

Getting Prepared for Your Initial Visit at an ALS Clinic

This checklist from I AM ALS includes questions you may want to ask during your first visit after an ALS diagnosis is confirmed.

ALS Diagnosis

ALS can be difficult to diagnose. There is no one definitive test, which means your neurologist may need to run a series of tests to rule out other conditions with similar symptoms. Learn more from Your ALS Guide.

Getting a Second Opinion

This article from The ALS Association offers tips on seeking a second opinion and questions you may want to ask.

Steps of an ALS Diagnosis

This article from Massachusetts General Hospital breaks down the process of an ALS diagnosis.

Just Diagnosed with ALS? We Are with You

This guide from I AM ALS shares things to do when you receive an ALS diagnosis.

Questions to Ask Leading Up to an ALS Diagnosis

This checklist from I AM ALS includes questions that may be helpful in guiding your discussion with your physician about what to expect during the ALS diagnostic process.

The Genetics of ALS

This article from The ALS Association provides information about the genetics of ALS, including commonly known genes and patterns of inheritance.

Understanding Your Rights living with an ALS-Related Genetic Alteration

This article provides information on protections against discrimination based on genetic testing results.

Having Children While at Risk of Familial ALS

This resource outlines some of the options available as you explore the desire and ability to have children.

Participating in ALS Research

This resource discusses the experience of participating in research for someone impacted by familial ALS.

Genetic Testing for ALS

This article from The ALS Association provides information on what genetic testing includes, its cost, and more.

ALS and Genetics: What Do We Know?

This interview from Cedars Sinai with Dr. Robert Baloh discusses gene therapy and how it's changing ALS research.

I Just Took a DNA test – Turns Out I Don’t Have All the Answers (Webinar)

This webinar from the Northeast ALS Consortium (NEALS) presents everything you need to know about genetic testing and ALS.

Early ALS Symptoms

This article from Your ALS Guide shares information about early symptoms for limb-onset, bulbar-onset, and respiratory-onset ALS, along with potential cognitive changes.

Assistance in Stages of ALS

This article from the Muscular Dystrophy Association outlines the different stages of ALS.

Symptom Management for ALS

This article from Massachusetts General Hospital dives into the most common symptoms of ALS and how to manage them.

Cognitive and Behavioral Changes in ALS

This article from The ALS Association provides information about cogntiive and behavioral changes that may be associated with an ALS diagnosis.

ALS Treatments and Trials

This article from I AM ALS shares information on FDA-approved treatments, clinical trials, and supplements for ALS.

ALS Care

This article from Your ALS Guide offers a helpful list of services and medical care to look into as a caregiver of a person with ALS.

ALS Untangled

This website, curated by Dr. Richard Bedlack from Duke University and sponsored by The ALS Association, shares reviews of alternative and off label treatments for people with ALS.

Palliative and Hospice Care for ALS

This article from I AM ALS discusses the differences between palliative care and hospice care.

Palliative Care in ALS Clinics (Webinar)

This webinar from Northeast ALS Consortium (NEALS) offers information on palliative care.

Understanding the Benefits of a Multidisciplinary Team Approach in ALS

This guide from Archives of Physical Medicine and Rehabilitation explains the benefits of having a multidisciplinary team approach to ALS.

Get Prepared for Emergency Medical Situations When You Have ALS

This article from I AM ALS offers advice for patients with ALS and caregivers when faced with a medical emergency.

Getting Your ALS Health Care Team Together: Four Steps to Take

ALS Clinic Map

This interactive map allows you to search and find an ALS clinic near you.

Clinical Trials Medical Records and Information Checklist

This is a list of the information most commonly required by a clinical trial to help you feel prepared.

Email/Fax Template for Clinical Trials Interest Form

This I AM ALS template can be helpful when reaching out to a clinical trial coordinator as it includes a list of commonly requested information.

Checklist of Questions To Ask About a Specific Clinical Trial

This I AM ALS checklist includes questions to ask your care team to learn more about a clinical trial's logistics, from trial-related costs to privacy information to how samples associated with the trial are handled.

Checklist of Questions To Ask About Clinical Trials

This I AM ALS checklist includes questions to ask your care team to learn more about clinical trials, the associated benefits and risks, and help identify trials that you may be able to participate in.

Understanding Clinical Trial Phases

This article from Clara explains the various phases of clinical trials and why you may choose to only search for trials in a certain phase.

Clinical Trials: Frequently Asked Questions

This resource includes frequently asked questions with answers about clinical trials including what they are, what it's like to participate in them, and more.

ALS Signal – Explore ALS Clinical Research, Trials and Studies

This dashboard from I AM ALS shares active and upcoming clinical research, trials and studies for people with ALS.

What is a Clinical Trial?

This article from Clara explains what you need to know about how a clinical trial works.

How Placebos Are Used in Clinical Trials

This article from Clara gets into the nitty-gritty of clinical trial control groups and placebos.

What it’s Like to Participate in a Clinical Trial

This article from Clara explains what to expect when you participate in a clinical trial.

Insurance Coverage and the Cost of Clinical Trials

This article from Clara discuses which costs are covered and not covered for a patient in a clinical trial.

ALS Treatments and Trials

This article from I AM ALS shares information on FDA-approved treatments, clinical trials, and supplements for ALS.

Expanded Access Programs in the US

This is a list of ALS clinical trials that currently offer expanded access in the US.

Right to Try Fact Sheet

This handout from the FDA provides a brief overview of how and whether you may be eligible to obtain a treatment through Right to Try.

Expanded Access (Article)

This article from the FDA goes over the basics of Expanded Access and how it can work when trying to access a treatment that is still being trialed.

Expanded Access (Webinar)

This webinar from Northeast ALS Consortium (NEALS) explains what expanded access is and how it connects patients with life-threatening illnesses to experimental drugs.

Right to Try (Webinar)

This webinar from Northeast ALS Consortium (NEALS) details the history and legal and ethical considerations of Right to Try legislation, which gives terminally ill patients the right to ask companies for access to their investigational drug.

My ALS Decision Tool: Breathing Support

This tool from the Les Turner ALS Foundation can help you learn about non-invasive ventilation and help you decide if it’s right for you.

ALS and Breathing

This respiratory guide from the Les Turner ALS Foundation provides helpful information on how ALS affects breathing, assistive equipment, non-invasive and invasive therapies, and more.

Tracheostomy and ALS

This resource shares more about tracheostomies and is a collection of educational resources from across the ALS community.

ALS Respiratory Support

This list from Your ALS Guide details respiratory equipment and support for people with ALS.

Questions to Ask about Respiratory Care & Symptoms

This list of questions can help you start a conversation with your care team about the impact of ALS on your breathing and your care options.

Information About Mucus Plugs

This article from The ALS Association explains how mucus can accumulate in the lungs and reduce airflow, and offers information on mucus plugs.

Speech & Swallowing with ALS

This article from Massachusetts General Hospital offer guidelines on how to manage respiratory issues connected to an ALS diagnosis.

Symptom Management for ALS

This article from Massachusetts General Hospital offers guidelines on how to manage respiratory issues connected to an ALS diagnosis.

Starting the Hard Conversations Around ALS

This video from I AM ALS founders Sandra and Brian explores the importance of addressing tough questions about ALS.

Designing a Toolbox for Continuous Communication with Your Existing Technology (Webinar)

This webinar from the Les Turner ALS Foundation highlights perspectives from an occupational therapist (OT) and a speech language pathologist (SLP) on how to best utilize your technology to enhance/supplement your communication.

Communication Basics for People with ALS

This guide from Amy and pALS provides helpful information with examples of low-tech and high-tech alternative and augmentative communication options, guidance on planning, and more.

ALS and Communication

This guide from the Les Turner ALS Foundation provides information on how ALS impacts speech and communication, alternative and augmentative communication options, devices, and more.

ALS Voice Banking, Message Banking & ‘Double Dipping’

This guide from Team Gleason explains the different options for preserving your voice, including voice banking, message banking or double dipping (synthetic voice).

ALS Augmentative Communication Program

This site details Boston Children's Hospital's ALS Augmentative Communication Program, which entails augmentative communication assessments, therapy, trials and training for people with ALS.

ALS Communication Devices

This article from Your ALS Guide lists the ways to communicate once your ALS progresses, including voice banking, message banking, double dipping and more.

Changes in Speech and Communication Solutions

This article from The ALS Association provides a manual on communication changes and solutions for people with ALS.

Feeding Tubes/Nutrition

This resource shares more about feeding tubes and nutrition and is a collection of educational resources from across the ALS community.

Managing Speech and Swallowing Problems in ALS (Webinar)

This webinar from The Les Turner ALS Foundation provides a high-level overview of speech and swallowing problems that may arise throughout an ALS diagnosis.

My ALS Decision Tool: Nutrition Support

This tool from The Les Turner ALS Foundation can help you learn about using a feeding tube and help you decide if it’s right for you.

11 Ways to Maintain Nutrition in People with ALS

This article from The ALS Association offers tips on how to maintain nutrition levels when you have ALS.

Understanding Percutaneous Endoscopic Gastrostomy (PEG)

This brochure from The American Society for Gastrointestinal Endoscopy provides the basics on PEG, percutaneous endoscopic gastrostomy, a feeding tool that enables patients to get adequate nutrition and hydration.

Adjusting to Swallowing Changes and Nutritional Management in ALS

This guide from the ALS Association offers information on how to adjust to swallowing changes and maintaining nutrition.

Questions about PEG tubes

This list of questions from I AM ALS can help you start a conversation with your care team about feeding tubes.

Ask the Dietician

This interview with ​dietitian ​Jamie Garry in Your ALS Guide provides insight on calorie intake and nutritional needs for people with ALS.

ALS & Activities of Daily Living

This guide from The Les Turner ALS Foundation provides helpful information on tips for maintaining energy, sleeping, and equipment for adapting activities such as eating, dressing, toileting, recreation, grooming, and more.

ALS Mobility Equipment

This helpful list from Your ALS Guide offers recommendations on mobility equipment for ALS patients, from walking aids to power wheelchairs.

Mobility and Power Wheelchairs

This resource from Team Gleason provides a brief overview of things to consider when being evaluated for a new power wheelchair.

Mobility Options – Wheelchairs

This article from ALS From Both Sides features a breakdown of mobility options and their features for people living with ALS.

Improving Mobility

This article from The ALS Association discusses the different options available for ALS patients to assist with mobility.

When Mobility is Affected by ALS

This guide from The ALS Association digs into what happens when mobility is affected and ways to adapt.

Fall Prevention

This article from Massachusetts General Hospital offers helpful tips for ALS patients on how to prevent a fall.

Helpful Tips for Traveling with ALS

This blog from The ALS Association shares tips on how to travel safely with ALS through several different means of transportation.

Traveling with ALS

This article from Your ALS Guide provides tips on how to travel smartly and safely when you have ALS.

TSA Disabilities and Medical Conditions

This page on TSA's website details special procedures for people with disabilities.

Transportation with ALS

This article from Your ALS Guide discusses how to use cars and ride sharing when you have ALS.

Driving Challenges with ALS

This article from The ALS Association offers tips for family or caregivers on how to talk to your loved one with ALS about driving.

ALS Respiratory Support

This list from Your ALS Guide details respiratory equipment and support for people with ALS.

ALS Mobility Equipment

This helpful list from Your ALS Guide offers recommendations on mobility equipment for ALS patients, from walking aids to power wheelchairs.

ALS Bathroom Equipment

These guides provide insight about types of equipment that may be helpful when navigating the bathroom with ALS.

Tracheostomy and ALS

This resource shares more about tracheostomies and is a collection of educational resources from across the ALS community.

ALS Braces Guide

This guide from Your ALS Guide includes information about neck braces, wrist braces, hand splints, and ankle foot braces for ALS.

ALS Communication Devices

This article from Your ALS Guide lists the ways to communicate once your ALS progresses, including voice banking, message banking, double dipping and more.

ALS Patient Lifts

This article from ALS From Both Sides provides a breakdown of different types of lift options when mobility is limited.

ALS Technology Guide

This guide from Every 90 Minutes features a list of technological devices that can assist you on your ALS journey.

ALS Mobility Equipment

This helpful list from Your ALS Guide offers recommendations on mobility equipment for ALS patients, from walking aids to power wheelchairs.

Resources for Daily Living

This guide from The Les Turner ALS Foundation offers tips and resources for daily living for ALS patients.

ALS & Home Modifications

This guide from the Les Turner ALS Foundation provides information on home modifications to ease mobility and care including lifts, ramps, doors, bathroom changes, and more.

Home Adaptations

This article from The ALS Association helps you identify and execute home modifications when you have ALS.

Home Modifications for ALS

This article from Your ALS Guide explores the financial costs for home modifications and how to find a reputable contractor.

Remodeling Your Home for ALS

This article from ALS From Both Sides features a breakdown of possible home modificiations as explained by nurse and ALS patient, Diane Huberty.

10 Tips for ALS Home Modifications and Adaptive Equipment

This article from Accessible Systems features ten tips for making your home fit your needs when you have ALS.

Questions To Ask a Potential Home Health Agency

This checklist from I AM ALS has questions to help guide your discussion with potential home health agencies so you can narrow your options and select the one that best fits your needs.

Questions to Ask While Interviewing Potential Caregivers

This checklist from I AM ALS is a helpful starting point when interviewing potential caregivers so you can find someone with the skills, personality, and values to best fit your needs.

Can I Be Paid as a Caregiver for My Aging Loved One?

This tool from Paying for Senior Care can assist in identifying programs that could pay you to be a family caregiver.

Caregiving Options and Information

The article from Your ALS Guide discusses caregiver and other support options and helpful information.

Hiring In-Home Help

This article from The ALS Association offers tips on recruiting, interviewing, screening and hiring in-home help.

Types of Home Care Workers

This article from The ALS Association explains the different types of home care workers and what their benefits are.

Paying for Home Care

This article from The ALS Association discusses the different ways home care can be covered or paid for.

Choosing a Home Health Care Agency

This article from The ALS Association explores the benefits of hiring a home health care agency who can handle a variety of tasks and services.

Living with ALS at Home

This article from The ALS Association provides home health care resources for people living with ALS.

Working Successfully with In-Home Service Providers

This article from The ALS Association offers tips on how to work and communicate with your new in-home service provider.

How to Know When to Hire In-Home Help

This article from The ALS Association helps you understand if the time has come to require in-home help.

Toilet Troubles

This link takes you to all things related to toileting -- constipation, considerations for women's toileting needs, toileting with a lift, and more.

ALS Bathroom Equipment

These guides provide insight about types of equipment that may be helpful when navigating the bathroom with ALS.

Changes in Thinking & Emotional Lability

This article from The ALS Association Texas Chapter lists symptoms, risk factors, and other information surrounding changes in thinking and emotions for people living with ALS.

Frontotemporal Dementia and ALS

This article from Your ALS Guide shares information about symptoms of frontotemporal dementia (FTD) in ALS.

Cognitive and Behavioral Changes in ALS

This article from The ALS Association provides information about cogntiive and behavioral changes that may be associated with an ALS diagnosis.

5 Steps to Make Your Relationships Stronger than ALS

This article from ALS News Today features tips on how to strengthen your relationships with friends and family members.

Living with ALS: Sexuality and Intimacy

This article from Massachusetts General Hospital explores the challenges ALS can cause with intimacy and how to address those concerns.

Caring for a Parent with ALS

This article from I AM ALS shares helpful information on how to care for a parent with ALS.

Caring for a Spouse or Partner with ALS

This article from I AM ALS provides practical information on how to care for a partner with ALS.

Defining The Relationship: We’re More than Our Roles

This essay on ALS News Today explores what it's like to be the caregiver of a husband with ALS.

Understanding SSDI Access for People without the Required Work History

Everything you need to know about social security disability insurance (SSDI)

Talking about money can be stressful -- and it becomes even harder when you’re facing the financial realities of navigating life with ALS. We’ve got your back. We’ve provided some helpful information and resources on Social Security Disability Insurance (SSDI) and Medicare benefits that could be accessible to you.

Navigating Medicare

This article from The ALS Association explains how to sign up for Medicare.

Medicare & Hospice

This article from the Center for Medicare Advocacy describes what hospice care is, how Medicare covers it and other important information on end-of-life care.

Medicare & Home Health

This article from the Center for Medicare Advocacy presents information on what Medicare home health care is and which services are covered.

SSDI & Medicare for ALS

This article from Your ALS Guide shares everything you need to know about qualifying for, applying for and receiving Social Security Disability Insurance and Medicare benefits for ALS.

Medicaid for ALS

This article from Your ALS Guide explains what you need to know about qualifying for, applying for and receiving Medicaid benefits.

FYI: A Professional’s Guide to Assisting Families with Obtaining Government Benefits

This professional guide from The ALS Association offers information on how to apply for Social Security Disaiblity Insurance, Medicare and Medicaid, and how to receive benefits.

Can I Be Paid as a Caregiver for My Aging Loved One?

This tool from Paying for Senior Care can assist in identifying programs that could pay you to be a family caregiver.

Paying for Home Care

This article from The ALS Association discusses the different ways home care can be covered or paid for.

Taxes

This article from The ALS Association provides insight on tax deductions, employment taxes for in-home caregivers, and other tax considerations for those impacted by ALS.

Planning & Making Decisions

This guide from The ALS Association offers tips on handling employment, financial concerns and legal issues.

Find Financial Assistance

This tool from I AM ALS will help you discover financial assistance in your state.

Speaking Up for Your Loved One: How to Advocate for your Hospice Patient

This article from TriHealth explains how to advocate for your loved one in hospice.

7 Things to Keep in Mind If a Loved One Has ALS

This article from ALS News Today shares seven important things to keep in mind when your loved ones is diagnosed with ALS.

How to Build Your Care Plan

Navigating ALS is hard, especially when you don't know which questions to ask. Start here.

Caregivers – Start Here

This page from I AM ALS shares helpful information on what to do when you're first diagnosed with ALS.

Can I Be Paid as a Caregiver for My Aging Loved One?

This tool from Paying for Senior Care can assist in identifying programs that could pay you to be a family caregiver.

Caring for Yourself

This page from I AM ALS offers tips for caregivers on how to practice self-care.

Identifying ALS Caregiver Burnout

This article from ALS Treatment explains how to recognize caregiver burnout and how to prevent it.

Guide for Caregivers

This comprehensive guide from Muscular Dystrophy Association provides information on finding, hiring and managing caregivers.

Practicing Self-Care

This article from The ALS Association offers tips on how to practice self-care.

ALS Caregiver Perspective: On Sadness

This blog post from writer Kelsie Snow beautifully shares the deep sadness she felt as she watches her husband's ALS progress.

Grief for Beginners: 5 Things to Know About Processing Loss

This article from NPR shares five tips from grief counselor Terri Daniel on how to process loss.

At School: A Guide to Supporting Students Who Have Been Affected by ALS

This guide from the ALS Association provides information for school or teaching professionals on the impact of ALS on children and how to support them and their families.

Helping Children Cope With ALS: A Parental Information Guide

This guide for parents from the ALS Society of Canada provides information on how to talk to children about ALS.

Developmental Grief Responses

This article from Eluna describes signs to look out for in grieving children and ways to help.

Supporting Kids and Teens through ALS

This article from I AM ALS offers guidance from the nonprofit Wonders & Worries on how to talk to kids and teens about a serious diagnosis.

ALS Resources for Kids and Teens

This article from I AM ALS lists resources for children and teens who have a loved one with a serious illness such as ALS.

ALS Resources for Children

This page from Hope Loves Company features resources, including books, podcasts, movies, organizations and scholarships, for children who have or have had a love one with ALS.

Questions To Ask a Potential Home Health Agency

This checklist from I AM ALS has questions to help guide your discussion with potential home health agencies so you can narrow your options and select the one that best fits your needs.

Questions to Ask While Interviewing Potential Caregivers

This checklist from I AM ALS is a helpful starting point when interviewing potential caregivers so you can find someone with the skills, personality and values to best fit your needs.

ALS and Activities of Daily Living

This guide from the Les Turner ALS Foundation provides helpful information on tips for maintaining energy, sleeping, equipment for adapting activities such as eating, dressing, toileting, recreation, grooming and more.

How to Know When to Hire In-Home Help

This article from The ALS Association helps you understand if the time has come to require in-home help.

Working Successfully with In-Home Service Providers

This article from The ALS Association offers tips on how to work and communicate with your new in-home service provider.

Living With ALS at Home

This article from The ALS Association provides home health care resources for people living with ALS.

Choosing a Home Health Care Agency

This article from The ALS Association explores the benefits of hiring a home health care agency who can handle a variety of tasks and services.

Can I Be Paid as a Caregiver for My Aging Loved One?

This tool from Paying for Senior Care can assist in identifying programs that could pay you to be a family caregiver.

Paying for Home Care

This article from The ALS Association discusses the different ways home care can be covered or paid for.

Caregiving Options and Information

The article from Your ALS Guide discusses caregiver and other support options and helpful information.

Types of Home Care Workers

This article from The ALS Association explains the different types of home care workers and what their benefits are.

Hiring In-Home Help

This article from The ALS Association offers tips on recruiting, interviewing, screening and hiring in-home help.

Advanced Care Planning for ALS

This helpful resource from I AM ALS dives into wills, estate planning, life insurance, DNRs and more.

More on Advance Directives

This article from The ALS Association features information on the whats and whys of advance directives.

Employment and ALS

This helpful article from Your ALS Guide discusses employment and employment-related considerations (e.g. disability benefits, health insurance) when diagnosed with ALS.

The Death Deck

This is a card game that encourages conversations about death and dying with family and friends.

Approaching End of Life in ALS

This guide from The ALS Association explores the thoughts and feelings you may have as you approach the end of your life.

Your Conversation Starter Kit for Loved-Ones

This starter kit from the Institute of Healthcare Improvement offers prompts on how to talk about end-of-life care with your loved ones.

How to Choose and be a Health Care Proxy

This guide from the Institute of Healthcare Improvement lays out decisions in selecting your health care proxy.

How to Talk to Your Doctor About End of Life Care

This guide from the Institute of Healthcare Improvement provides prompts to get the conversation started with your doctor on your end-of-life wishes.

End of Life Planning is a ‘Lifetime Gift’ To Your Loved Ones

This NPR article offers steps for getting your end-of-life affairs in order.

Starting the Hard Conversations Around ALS

This video from I AM ALS founders Sandra and Brian explores the importance of addressing tough questions about ALS.

ALS Facebook Groups

We have created this resource to help you explore which Facebook groups may be a good fit for you as a person living with ALS, a caregiver to someone with ALS or a loved one navigating ALS.

ALS Ways to Help

This article from The ALS Society of Canada lists ways your friends and family can help when you share your diagnosis with them.

How to Help Your Friends When They Ask to Help You

This ALS News Today article from ALS patient Dagmar Munn offers helpful tips on what to say to your friends and loved ones who want to help.

Rallying Your Community

This article from I AM ALS offers resources on how to best activate the support of your friends and family who want to help.

5 Steps to Make Your Relationships Stronger than ALS

This article from ALS News Today features tips on how to strengthen your relationships with friends and family members.

Spanish Language ALS Resources

For Spanish-speakers impacted by ALS, a language barrier can complicate the process of getting an ALS diagnosis and finding resources and support, which can be a seemingly insurmountable hurdle to accessing care.

ALS Facebook Groups

We have created this resource to help you explore which Facebook groups may be a good fit for you as a person living with ALS, a caregiver to someone with ALS or a loved one navigating ALS.

Your Wellbeing Matters

The terms mental health and self care are tossed around often, so let’s talk about what they mean and why they matter in ALS. 

Mental Health Among Veterans with ALS

Veterans are twice as likely to be diagnosed with ALS compared to their civilian counterparts. This means that you have a community that understands what you’re going through and can provide support and answers to the questions and worries you may have. Get access to help and information through this resource if you are struggling with mental health.

Self-Care for Caregivers

This worksheet from I AM ALS provides questions to get you thinking about your mental heath and self-care routine.

Seven Ways to Cope with Uncertainty

This article from I AM ALS offers seven tips for how to cope with uncertainty.

Caring for Yourself

This page from I AM ALS offers tips for caregivers on how to practice self-care.

ALS and Loss

This page from I AM ALS goes over anticipatory grief and the six stages of loss with an ALS diagnosis.

Grief for Beginners: 5 Things to Know About Processing Loss

This article from NPR shares five tips from grief counselor Terri Daniel on how to process loss.

Caregiver Perspective: On Sadness

This blog post from writer Kelsie Snow beautifully shares the deep sadness she felt as she watched her husband's ALS progress.

ALS and Loss

This page from I AM ALS goes over anticipatory grief and the six stages of loss with an ALS diagnosis.

I’m a Veteran Diagnosed with ALS – Where Do I Begin?

This detailed guide, written by veterans living with ALS, helps veterans diagnosed with ALS navigate the complex worlds of veterans benefits and the veterans healthcare system.

Planning Guide for Loved Ones of a Veteran with ALS

Download this guide for caregivers of a Veteran living with ALS to help you plan ahead.

VA Checklist for Veterans Living with ALS

Download this checklist created by the Veterans Team to help you access your VA benefits as soon as possible.

Navigating the Veterans Administration (VA) with ALS

This practical guide from I AM ALS provides helpful advice on how to navigate the VA when you have ALS.

Find Your VA Clinic

This tool from Veterans Affairs will help you find a VA office near you.

Thinking Through VA Benefits and VA Care

This book from author Mary Hahn Ward, whose husband has service-connected ALS, offers practical advice on how to utilize VA benefits and care when you have an ALS diagnosis.

Information on VA Benefits

This article from The ALS Association explains what you need to know about VA benefits.

Understanding Veterans’ Risk for ALS

This article from I AM ALS helps you understand the connection between Veterans and ALS.

ALS Facebook Groups

We have created this resource to help you explore which Facebook groups may be a good fit for you as a person living with ALS, a caregiver to someone with ALS or a loved one navigating ALS.

Your Wellbeing Matters

The terms mental health and self care are tossed around often, so let’s talk about what they mean and why they matter in ALS. 

Mental Health Among Veterans with ALS

Veterans are twice as likely to be diagnosed with ALS compared to their civilian counterparts. This means that you have a community that understands what you’re going through and can provide support and answers to the questions and worries you may have. Get access to help and information through this resource if you are struggling with mental health.

Seven Ways to Cope with Uncertainty

This article from I AM ALS offers seven tips for how to cope with uncertainty.

ALS and Loss

This page from I AM ALS goes over anticipatory grief and the six stages of loss with an ALS diagnosis.

Join Our ALS Peer Support Initiative

The I AM ALS Peer Support Initiative connects those impacted by ALS to one another to provide unique support. Match with a trained ALS mentor or apply to become an ALS mentor.

Join an ALS Support Group

I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.

Spanish Language ALS Resources

For Spanish-speakers impacted by ALS, a language barrier can complicate the process of getting an ALS diagnosis and finding resources and support, which can be a seemingly insurmountable hurdle to accessing care.

ALS Signal – Explore ALS Clinical Research, Trials and Studies

This dashboard from I AM ALS shares active and upcoming clinical research, trials and studies for people with ALS.

Just Diagnosed with ALS? We Are with You

This guide from I AM ALS shares things to do when you receive an ALS diagnosis.

Caregivers – Start Here

This page from I AM ALS shares helpful information on what to do when you're first diagnosed with ALS.

ALS Clinic Map

This interactive map allows you to search and find an ALS clinic near you.