Cures Collective
1 in 4 people are likely to be diagnosed with a neurodegenerative disease, such as ALS, FTD, Parkinson’s, MS, Huntington’s, Alzheimer’s and more.
While researchers recognize the deep interconnections among neurodegenerative diseases, efforts to understand and combat them remain fragmented—divided by silos in research, funding, care, and policy. There is no unified strategy, no comprehensive coordination that bridges science, clinical care, public awareness, and legislative action. Opportunities for collaboration among key stakeholders—researchers, clinicians, industry leaders, patients, and policymakers—are scarce. With neurodegenerative diseases projected to become the second leading cause of death globally by 2040, the time for fragmented approaches is over. We must act now—together—with urgency and cohesion.
I AM ALS, along with its Steering Committee, launched the Cures Collective in April 2024 to drive this paradigm revolution.
Steering Committee
We are stronger with partnerships and perspectives across ALS, FTD, MS, Huntington’s, Parkinson’s, and Alzheimer’s. Representatives from these disease areas will also make up the steering committee.
The current steering committee members include the Hummingbird Fund, Huntington’s Disease Youth Organization, Les Turner ALS Foundation, PD Avengers, I AM ALS, CureGRN, Hop On A Cure, Dr. Jinsy Andrews, and Jenny Fortner. We are deeply grateful to Sharon Hall, a former member of the inaugural steering committee and a vital FTD advocate.
📸 A portion of members at the 2025 Cures Collective Annual Meeting in Washington, D.C.
2025 Cures Collective Members:
- ALS Association
- ALS in the Heartland
- ALS Network
- ALS Ride for Life
- ALS Strategy Consulting
- ALS United
- ALS United Arizona
- ALS United Connecticut
- ALS United Greater Chicago
- ALS United Mid-Atlantic
- ALS United New York
- ALS United North Carolina
- Alzheimer’s Pathobiome Initiative
- American Brain Coalition
- Bridging Voice
- Center for Medicare Advocacy
- CureGRN
- Cure PSP
- Cure MAPT FTD
- For Their Thoughts Foundation
- Huntington’s Disease Youth Organization
- Hop On A Cure
- Hope Loves Company
- Hummingbird Fund
- I AM ALS
- Les Turner ALS Foundation
- Live Like Lou
- Lorenzo’s House
- MAC Angels Foundation
- Matt’s Place Foundation
- Michael J. Fox Foundation
- National MS Society
- NEALS
- Parkinson’s Wellness Fund
- PD Avengers
- PMD Alliance
- Solving MS
- Special Interest Group – Black Diaspora
- Synapticure
- Team Gleason
- Your ALS Guide
Independent Advocates:
- Ashley Lee
- David Shulman
- Elin Adcock
- Jacob Wentworth
- Jenny Fortner
- Sharon Hall
- Troy Fields
Working Groups:
In response to members’ identified priority needs across all neurodegenerative diseases, the Collective launched four strategic working groups to drive coordinated action and accelerate progress.
Stay Connected:
Sign up for our quarterly newsletter to stay informed about progress and collective action, upcoming events, and members’ activities.
Frequently Asked Questions
Who started the Cures Collective?
I AM ALS launched the Cures Collective in 2024 because we know that ALS cannot and should not be solved alone. While I AM ALS continues to convene and incubate the Collective, a steering committee of leading advocates and organizations across neurodegenerative diseases was formed to build and guide a unified coalition.
How is the Cures Collective funded?
I AM ALS is raising funds for the Cures Collective through generous donors, foundation funders, and industry partners. Support for the Cures Collective is only utilized for this initiative, is separate from the organization’s advocacy efforts, and will not change or influence I AM ALS’s core mission or program delivery.
Who can join the Cures Collective?
The goal of the Cures Collective is to accelerate progress across our diseases by coming together, increasing collective power, and amplifying awareness. Independent advocates, nonprofit organizations, institutions, and companies that are committed to treatments and cures for ALS and other neurodegenerative diseases are welcome to request to join. Contact Aditi Narayan Minkoff at aditi@iamals.org to learn more about participation or sponsorship.
What will the Cures Collective accomplish together?
The Cures Collective will change the narrative and accelerate answers by centering people impacted by neurodegenerative diseases. We are actively identifying and addressing gaps in research and clinical trials, equitable access, care, community support, workforce development and more.
Thank you to our Cures Collective sponsors!
