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#CallingAllCaregivers

Welcome! I AM ALS is committed to honoring caregivers year-round by amplifying their stories, providing valuable resources, and building a community of supportive peers. We’re recognizing caregivers across the neurodegenerative disease community, including those with ALS, FTD, Huntington’s, Parkinson’s, and Alzheimer’s. We invite you to explore this page’s stories, resources, action items, and donate to support the mission of I AM ALS. When you give, you fund our critical work to support, educate, and uplift caregivers.

Calling-All-Caregivers

I am a caregiver…

Last December, we shared the stories of these five amazing caregivers across ALS and other neurodegenerative diseases. Click on any of them to watch their story.

Meg

Meg Reyes

Katie

Katie Kirkpatrick

Robert

Robert Lemons

Sandra

Sandra Abrevaya

ileen

Ileen McFarland

Caregiver Stories

Elizabeth Coccio

Elizabeth Coccio

I cherish the memories we made in the 11 months before she passed away and I miss her every single day.
Shirley Downs

Shirley Downs

This is the most horrific thing to watch. I see the love of my life disappearing in front of me.
Jennifer Robb

Jennifer Robb

Like many with ALS, I went through many diagnoses from ankle sprains to sciatica. As symptoms progressed, it became more clear something neurological was going on.
Laura Bussey

Laura Bussey

My daddy could not hug his grandchildren because he lost the strength to raise his arms. He could cry... and those tears rolled down his face quite often as he lay there watching us live our lives knowing he was not going to beat ALS.
Ken’s Story

Ken’s Story

My wife and I had to self-navigate/advocate until I joined the iamals.org family. They have continued educating and helping us as we learn to live with this devastating disease.
Tanya’s Story

Tanya’s Story

I will always and forever be an ALS advocate because it changed me too.

Caregiver Resources

Online Resource Center

Find more resources to help you navigate ALS and caregiving by clicking on the button below