Why patient centricity is no longer optional in ALS clinical trials

This webinar will cover the vital need for patient involvement in ALS clinical trials in order to improve recruitment, retention and data quality, as well as readiness to adhere to impending regulatory changes.

Join Paul Wicks, Ph.D., a neuropsychologist, independent consultant and Sano Genetics investor and Cathy Collet, a world-leading ALS advocate, for an important discussion.

Paul Wicks, Ph.D

Independent consultant and investor @Sano Genetics

Paul Wicks, Ph.D., is a neuropsychologist, independent consultant, and investor at Sano Genetics who helps life sciences companies generate evidence, revenue, and awareness. Paul has dedicated much of his career to patient-centric research and building patient communities, particularly in rare diseases such as ALS. Paul has spent 20 years in the digital health and online community space, 13 of which were spent as a senior leader at PatientsLikeMe. Paul will be the host of the webinar and leading the discussion.

Cathy Collet

Volunteer advocate @ALS Advocacy

Cathy Collet became a volunteer ALS advocate after losing her mother to the condition 25 years ago. She is one of the organizers of the ALS Advocacy Conference “More Than Our Stories” as well as being part of the selection committee for the ALS. MND Patient Fellows Symposium Program. She has received the Humanitas Award from Saint Mary’s College as recognition for her world-leading ALS advocacy work.