Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join us for the third webinar in the Respiratory Care in ALS series by the NEALS Ventilation and Respiratory Care Committee. This session will cover the current US guidelines for using non-invasive ventilation (NIV) in ALS, including research and clinical insights for optimizing NIV.
About the Program: Join us for our August ALS Learning Series on advocating for yourself and effectively communicating with your ALS health team, presented by Dr. Ambereen Mehta and Dr. Suzana Makowski, two leading palliative care ALS experts. This session will provide people living with ALS, their families, and care partners with practical strategies to ensure […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join us for the NEALS NICE Working Group Webinar on "The Role of Biomarkers in ALS" with James Berry, MD, MPH, and Bob Bowser, PhD, both principal investigators from the Access for All in ALS (ALL ALS) Consortium. They will discuss the evolving role of biomarkers in ALS. Biomarkers are biological markers, often genes and […]
Open Enrollment is the time each year when consumers can sign up or make changes to their health insurance coverage. This presentation will outline why you should care about Open Enrollment, factors to consider when enrolling in a new plan, and the importance of choosing your plan wisely, especially for those diagnosed with ALS. We […]
Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from Barnes Jewish Hospital in St. Louis, MO, will share essential information and insights about feeding tubes. Don't miss this opportunity to learn and ask questions […]
Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from Barnes Jewish Hospital in St. Louis, MO, will share essential information and insights about feeding tubes. Don't miss this opportunity to learn and ask questions […]
Join us to hear Dr. Fernando Vieira, CEO and CSO of the ALS Therapy Development Institute, and Dr. Richard Bedlack, Director of the Duke ALS Clinic, share the latest findings from the IGFBP7 ARC Study. This is a rare opportunity to gain insights into cutting-edge research and have your questions answered by two of the […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Title: Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice Speaker: Dr. Richard Bedlack Date: Thursday, November 14, 2024, at 10 am CST Link to register: https://us02web.zoom.us/webinar/register/WN_vs8Q-VTUSTGCd0r5XmWiaQ About the Program: Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In […]
Join this webinar to explore innovative, multidisciplinary approaches in disease modeling, drug testing, and tissue engineering using advanced in vitro systems. Dr. Francesco Saverio Tedesco will present cutting-edge examples, including the development of advanced muscle models for studying muscular dystrophies and designing more efficient, targeted therapies for neuromuscular diseases. Attendees will also gain insight into […]
